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Chronic Pain members - Welcome, please introduce yourself

Chronic Pain | Last Active: 5 hours ago | Replies (7051)

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@johnjustice42

My name is John, I had back surgery 25 years ago and came out worse than I went in. After 2 more attempts I gave up on the condition improving. I have tried numerous attempts to ease my pain, from PT, to acupuncture, acupressure, even voodoo but nothing worked. I had to continue to take opioids as this was the only way to get any type of relief. I have been to various pain clinics throughout the years, the latest placed a spinal cord stimulator that gives me absolutely no relief. I told the doctor that I had gone to the Pain clinic at Duke University and was told that I wasn't a candidate for this since pain didn't run down my legs, he explained that things had changed. so I went ahead with the stimulator. I have been on methadone for 23 years now, I like it because it doesn't give me brain fog. And for full disclosure I was prescribed high doses of Oxycontin, and Oxy IR for a couple of years, I was very tolerant of these, I didn't realize that you would build a tolerance as quick as I did and was told by the doctors that Oxycontin wasn't addictive. Now we know better, but I sometimes was taking as much as 12-14 80mg tablets a day but was prescribed 8-80mg tabs per day. needless to say I had no idea what withdrawals were but soon found out, unfortunately this led me to try and add to some of my scripts and I ended up in a methadone clinic for a few years, but they didn't want to treat me since I was in chronic pain so I was able to find a Pain clinic to help. Eventually I got down to 30mg of methadone per day and have been doing this for the past 23 years with no problems until a month ago when I had an appointment with the PA and I took my bottle. I had been putting my daily pills in a pillbox for ease, but that day I inadvertently got some of my BP meds (witch look just alike) and they said I was trying to deceive them, I assure I was not, so so weaned me off the methadone and said they wouldn't prescribe any more oral medication, but I could look at putting in a pain pump. This was nearly a month ago now, I can't sleep, I can barely get out of my easy chair. So I was to see if anyone had any suggestions, I can't get in with another clinic because of the doctors note. I can't believe I should be made to suffer because of a mistake. I know doctors have harsh penalties but in 23 years I never asked for a prescription early or had any other problem. So this is my story thanks for any suggestions.

Thanks again,

John M. Justice

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Replies to "My name is John, I had back surgery 25 years ago and came out worse than..."

i have great compassion for you. i have a hard time trusting any doctors now except for my rheumatologist who is wonderful She told me that doctors just throw out suggestions at you and you have to make a decision which ones to believe. I believe that there are doctors who keep up with new research and others who think they know everything from their med school. I had a doctor (now retired) who spent his evening catching up on all the new research. He was wonderful and I really miss him. He also believed what I told him. His replacement just prescribes the meds the old doctor gave me. This one had told me to try a new Fibromyalgia med, I told him I had a reaction to a similar drug he said this one was new and insisted I try it. My vision immediately went blurry and I was a couch potato (depressed and no energy) so I told him my reaction and stopped the drug. He then has not done anything. I don't have much trust in doctors now either. God bless you.