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Very low rectal cancer, I've got so many questions

Colorectal Cancer | Last Active: Jul 16 12:48pm | Replies (21)

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@daledales

It is a difficult time attempting to take in all the information that is thrown at newly diagnosed cancer patients.

I would continue to get recommendations from friends, nurses, doctors, online reviews, etc, for who to see to get second and third opinions. Develop list of questions and take notes. I recommend having someone that you trust "sit in" with your visits to each doctor. ( put your cell phone on desk, select speaker option during visit)

I had stage three colon cancer and was also given the the option after chemo/radiation to get surgery.

I was fortunate that my cancer went into full remission after 4 rounds of chemo and short course radiation, no detectable signs of cancer. Pathological complete response. PCR . Studies indicate that pathological complete response can vary between 15 to 30%

I am currently following a watch and wait protocol of twice per year MRI and PET scans and yearly colonoscopy. I did not have surgery.

Neuropathy is a common feature of oxiplatin chemo. Several drugs ( like pregabalin) can reduce the pins and needles aspect but not numbness. Good support/ cushioning shoes are also helpful. I wear Hoka shoes in and out of the house

Not all doctors are comfortable with the watch and wait approach. Good luck.

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Replies to "It is a difficult time attempting to take in all the information that is thrown at..."

"It is a difficult time attempting to take in all the information that is thrown at newly diagnosed cancer patients."

It's like trying to get a drink from a firehose - so much hitting all at once, much of which is confusing to the patient

I recommend having a trusted person go along to sessions discussing treatment options since there is so much to learn/understand.

As noted in the previous post (rephrased a bit), learn as much as you can from reliable sources. Knowledge helps dispel fear.