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@dadcue

Giving her adrenals a chance to produce cortisol depends on why she was put on a "maintenance dose of prednisone." An endocrinologist would do this if it was likely that her adrenals won't restart or won't produce enough cortisol again. If she has "permanent adrenal insufficiency" taking a maintenance dose of a corticosteroid is how that is treated.

She might not need Prednisone for PMR anymore. She might still need prednisone if she has adrenal insufficiency. I'm afraid rheumatologists "give up" sometimes when people can't taper off prednisone. It seems strange to me but people are willing to take Prednisone for the rest of their life If it relieves their symptoms of adrenal insufficiency --- their quality of life might be better. I don't know if that is the best outcome overall.

I had to stay on 3 mg without tapering for 6 months before my adrenals increased their production of cortisol. It might take someone else less time or more time. There is no way to predict how long it might take. One year is frequently the time frame that is given. If it doesn't happen in a year, it might be considered permanent ... I don't know.

My quality of life got better when I got off Prednisone. Fortunately, my adrenals weren't permanently suppressed.

Tylenol doesn't treat inflammation and swelling. It is not an NSAID. Tylenol can ease mild-to-moderate pain and bring down a fever. Unlike NSAIDs, it does not treat inflammation and swelling. Probably just a coincidence that the swelling went away but tylenol might have relieved the pain. Whatever happened - it was a good thing.

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Replies to "Giving her adrenals a chance to produce cortisol depends on why she was put on a..."

I learned years ago in nursing school that Tylenol was not anti inflammatory but then I read somewhere a couple of years ago that new research showed it did have anti inflammatory properties. All I can say is, at the high dose on the “Tylenol for Arthritis” bottle it most definitely did. Nothing else could explain that result at the time. Oh, and I now live in Plano, TX near Dallas. I have decided to see an Endocrinologist to evaluate both my adrenal situation and my long term use of levothyroxine. My daughter saw one she really felt gave her great information and I will make an appointment with him. It will probably take months to get in though.

Yes I was surprised about her comment on Tylenol relieving her pain and swelling. I agree with you that it was probably a coincidence for the same reason— it is not a NSAID. Personally I have found Tylenol great for a fever. If you have ever taken an opioid for pain, it usually has Tylenol in it because it actually helps an opioid drug to work better. So it does give good pain relief when combined with another drug. Tylenol by itself has limited pain relief , at least for me. I think it’s great that it worked for her. I have to rely on other meds like prednisone for inflammation cause I can’t take NSAIDS….