I appreciate learning more about your situation. I have say that you seem on top of the information you have and although this kind of situation is beyond stressful your positive and realistic attitude comes through. Neuroendocrine tumors are usually digestive. I've had four pathology reports and they all differ somewhat--my oncologist & I decided to just trust Mayo's. It is treated as "ordinary" breast cancer--but outcomes are pretty murky. I had a lumpectomy, 15 radiation treatments, and take letrozole, an aromatase inhibitor. All of this was/is quite tolerable. I didn't do chemo due to co-morbities--mostly kidney disease. My nephrologist didn't even want to sign off on anesthesia for lumpectomy, let alone most of the chemo drugs. This lined up with my approach, so I was fine skipping it. I've been told it is likely the cancer will recur, but I've had a terrific past year having finished treatment and doing well. I'm 70, and a kind of "live in the present" person. In a way I think I've come to accept that I'll never know the"why" of this rare cancer. At least it brought me to mayo Connect, which really helps. Keep in touch!
Interesting about COVID. I've had the vaccines, and never tested positive. I did have a very unusual influenza in my youth, but have no way of knowing if related--just thatI seem to be an unusual patient!