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New definitions of Long COVID

Post-COVID Recovery & COVID-19 | Last Active: Jun 28 11:48am | Replies (21)

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@dloos

The broad symptoms are definitely a problem.

I have blurred vision and hearing loss with tinnitus and hyperacusis. It is extreme and debilitating. So often when people hear my symptoms they say “Oh yes, I have that too.” Yet, they are going about their lives, so what they have is NOT what I have. The inference is that I should also be able to continue with my life as before.
I find this insulting to me as my life can NOT continue as before. If you occasionally have tinnitus, or you sometimes get blurry vision from too much screen time, it it NOT the same.

I think long Covid symptoms should be determined by the extent of your life changes. Are you able to go to work? Are you able to continue your normal routine?
Are you completely disabled? Minor symptoms confuse the issue, and minimize the suffering of so many.
I know some people are able to push through, or work from home, and make accommodations for their symptoms. Then there are those of us who can barely make it through the day, and life is destroyed. There should also be degrees of those diagnosed with long Covid.
It is a complex problem that has not, and perhaps will not be addressed.

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Replies to "The broad symptoms are definitely a problem. I have blurred vision and hearing loss with tinnitus..."

The tough part is like "on a scale of 1-10, how severe is your pain?" when each of us has different impact.

I work for myself and have for years. Now, I must work less and have to make adjustments to much of my life to, as you do, hear, or move about.

So as you note, is is degrees of long COVID - and still I'd be glad to just have it recognized v. dismissed.