I am kind of in the same boat as your husband, but my doctors at Dana Farber always respond to my portal messages. I was diagnosed January 2024. I started Chemo locally in March and was told they have found me a perfect match. I had another Cycle of chemo in April followed by a bone marrow bx in May. Bx came back with blast elevated. I then started cycle 3 with IV Chemo and Venetoclax pills. I have an appointment early July for another Bone Marrow Bx. If blast are down or not I will remain on the IV Chemo and Ventoclax til I get to Transplant. What I thought would be happening in May looks like it won't be until September. I have a special needs daughter at home and
need to make arrangements, which I have in place just waiting for the go ahead. It's diffentely a roller coaster ride and makes it hard to plan. I just started to live my life and hope I get at least a week notice to get my belongings together. I live 2 hours away and will be in Boston for 1 to 2 months.
Hang in there it's not an easy ride. I wish you both the best of luck.