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DiscussionAre painful swollen hands and fingers a PMR flare?
Polymyalgia Rheumatica (PMR) | Last Active: Jul 4 1:54pm | Replies (158)Comment receiving replies
Replies to "I was kept on 5 mg of prednisone for about 12 years as a maintenance dose...."
I would consider seeing an endocrinologist since your picking a new Dr. I would google as much as you can about Adrenal insufficiency.
Wowzer what a story!! My Rheumy gave me Colchicine once for some migrating joint pain. But in spite of scary drugs I’ve been on over the years, this one scared me and I took myself off. So you have my respect!
The tylenol story is amazing! Did your Doc have a theory?? There is a guy in our community here @dadcue who has PMR but has had or does have a host of auto immune conditions such as Reactive Arthritis and Uveitis and has a great layman's explanation of that point you reach and cant go lower, and how he managed around it. If nothing else i want him to read your unusual experience. He may have some useful insight.
What city have you moved to? We collectively represent deep knowledge of the good docs in almost any city. We can’t all access a premier facility like Mayo, but at a community level, we know a lot of the good Rheumies. I can recommend in Manhattan, Providence, RI, Chattanooga, TN, and Greensboro/Burlington, NC. And I’m one person.
Wishing you well!!