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Symptoms after you stop prednisone
Polymyalgia Rheumatica (PMR) | Last Active: Jun 18 11:37pm | Replies (15)Comment receiving replies
I have been on Prednisone for 4 years. Started on only 10 mgs but had several flares along the way. Finally got down to 1/2 mg for about 2 weeks then stopped about two weeks ago. I have no more PMR pains, but the withdrawal from Prednisone is awful. Lethargy, no appetite, nausea, etc. I've lost weight. Being an older adult (82), I'm wondering how long it will take for the cortisol to start working again.
Replies to "I have been on Prednisone for 4 years. Started on only 10 mgs but had several..."
I never got off of prednisone until went on dexamethasone. So now dexamethasone 1 mg twice a day. Goal 1 mg a day. Aches pain and sleep best control I have had. Almost 4 years into this. I am 82. I want mobility over aches pains and decreased function. This site has helped me so much.
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Are you seeing an endocrinologist? The treatment for adrenal insufficiency can be low dose prednisone but hydrocortisone is preferred. My endocrinologist told me to stay on 2-3 mg of Prednisone for "as long as it takes" for my cortisol level to improve.
I had the same symptoms which gradually improved over time. I have lost weight but that isn't a concern. I'm working at losing more weight by exercising more. I'm not as lethargic as I was.