1. < Osteoporosis & Bone Health

Prolia doctor prescribing 2 injections of Prolia in just 3 weeks

Posted by guinivere @guinivere, Jun 14 10:47pm

This doctor is with UW Madison. I have not seen her but she has all my records & test results, the whole deal. My communications wuth her have been through her staff. She has all my lab work & we had agreed earlier on Prolia but I was very taken aback when she scheduled my first injection for June 19 & what looks to be the second for July 7! I thought they were every 6 months!!11 I know my Dexa score was not good but the only fracture I have had has been in my wrist a year ago which still causes me pain. But I can't get over the feeling that I should not be taking those injections so close together!

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windyshores | @windyshores | Jun 17 6:50pm
In reply to @joann1941 "Are you sure both visits are accurate or did office mess up dates? Or is one..." + (show)
@joann1941

Are you sure both visits are accurate or did office mess up dates?
Or is one visit consult and 2 nd the shot?
I just stopped 5 yrs on Prolia every 6 months with labs being done within 30 days prior to each injection.

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@joann1941 what are you doing after Prolia to stop the rebound?

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1 reply
guinivere | @guinivere | Jun 17 8:59pm

They probably messed up the dates. I wrote a note about my disasppointment at lack of contact with her but got zero response. With my first injection coming up I am looking at alternatives.

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mayblin | @mayblin | Jun 17 11:34pm
In reply to @sandrac "I was stable and even improved to osteopenia after Prolia and Reclast. (I had 4-5 days..." + (show)
@sandrac

I was stable and even improved to osteopenia after Prolia and Reclast. (I had 4-5 days of feeling fluids right after Reclast and then it went away.)

Yes, the Evenity was prescribed as a result of fracturing two vertebrae after a fall down some wooden stairs. The doc said the impact would have caused the fractures even had I not had osteoporosis (or possibly done worse, I was lucky) but felt I needed to shore things up and help with the healing and to fortify the bones. I have only had 4 months of Evenity so far, so no tests yet. Healing process and PT have taken the better part of a year, so far. I will do whatever I can to protect my 74 year old bones! The only drug I ever reacted at all badly to was actonel, years ago. It helped my bones but reflux was bad and I am a classical singer and could not tolerate it.

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I'm so sorry to hear your unfortunate fall leading to fractures. It's great that you started evenity to build some quality bones. I thought it will be nice to have bone markers tested before and during evenity therapy. The btms may tell how years of prolia plus reclast would have any interference on an anabolic, if any, although you had a period of holidays after reclast. Fracture could also affect bone makers, which results in hard-to-interpreting btms. In any case, please keep us posted of your progress.

Best wishes!

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donnajones | @donnajones | Jun 18 6:04am
In reply to @guinivere "Dimdina, thanks so much for your reply. I am going to call the Endocrinology Dept tomorrow,..." + (show)
@guinivere

Dimdina, thanks so much for your reply. I am going to call the Endocrinology Dept tomorrow, & tell the whole deal. That I have never had an inperson appt with her & have only spoken to her once. All communications with her - which have been very few - have been thru the Message Center. My only communications with ANYONE have only been thru the Message Center! And then yesterday I actually have someone call me who tells me I am to take 3 Prolia injections in less than a month!

This is incredible.

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That doesn’t sound right, 3 injections in less than a month, your insurance will probably only pay for 1. Be sure you get another opinion because this does not sound right.

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njhornung | @normahorn | Jun 18 7:15am
In reply to @joann1941 "Are you sure both visits are accurate or did office mess up dates? Or is one..." + (show)
@joann1941

Are you sure both visits are accurate or did office mess up dates?
Or is one visit consult and 2 nd the shot?
I just stopped 5 yrs on Prolia every 6 months with labs being done within 30 days prior to each injection.

Jump to this post

I think your idea of a visit followed by an injection at a late date seems very reasonable.

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1 reply
dlmdinia | @dlmdinia | Jun 18 8:59am
In reply to @guinivere "Dimdina, thanks so much for your reply. I am going to call the Endocrinology Dept tomorrow,..." + (show)
@guinivere

Dimdina, thanks so much for your reply. I am going to call the Endocrinology Dept tomorrow, & tell the whole deal. That I have never had an inperson appt with her & have only spoken to her once. All communications with her - which have been very few - have been thru the Message Center. My only communications with ANYONE have only been thru the Message Center! And then yesterday I actually have someone call me who tells me I am to take 3 Prolia injections in less than a month!

This is incredible.

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Per the Prolia website dosage is one shot every 6 months.
https://www.evenityproliahcp.com/starting-prolia/dosing

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Christine | @thisoldewe | Jun 19 6:38am

@guinivere
For fast, professional and knowledgeable information, speak with your Pharmacist.
As mentioned, this seems to be a 'communication glitch' amongst staff.
Good for you to question this.
All the best to you.

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bobweller | @bobweller | Jun 19 8:29am
In reply to @windyshores "@joann1941 what are you doing after Prolia to stop the rebound?" + (show)
@windyshores

@joann1941 what are you doing after Prolia to stop the rebound?

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Rebound?

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1 reply
bobweller | @bobweller | Jun 19 8:34am

With Prolia usually you take a vitamin D supplement and a calcium supplement regularly.

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windyshores | @windyshores | Jun 19 10:33am
In reply to @bobweller "Rebound?" + (show)
@bobweller

Rebound?

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@bobweller when Prolia is stopped, it is well-known and often mentioned by my doctors, videos and books, that there is a risky rebound with bone density possibly even going down to where it was before treatment, and fracture risk abruptly going up. This is because, in simple terms, the cells responsible for bone turnover are suppressed and dormant and come roaring back.

We need to do Reclast (and time the transition with bone markers) to prevent this rebound. I Prolia was only given 2-3 times then Fosamax or other orals might work.

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