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Sphincter of Oddi Dysfunction: What helps you?

Digestive Health | Last Active: 2 days ago | Replies (39)
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@eeskildsen7

You are not crazy!!!! I ended up having an ERCP about 7 years ago. There are 3 types of this… to me you would be considered Type 3 like me. I have had labs drawn during and after attacks… that’s what I call them. Nothing is EVER elevated!!! After 7 years… all my symptoms are coming back and I had one of the worst attacks and like you wanted to go to the ER but could not get myself there. I feel your pain… hence the reason I ended up joining this group!

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amelianazapa | @amelianazapa | 2 days ago

Same on the elevated test results, none. It was the scans taken in the ER and a referral to gastro where a doctor measured the diameter of the sphincter that landed my diagnosis.
The only treatnent offered was surgery to permanently open the sphincter.
Along with the treatment plan the doctor also shared that many doctors still don't believe this is a real condition and that chronic pancreatitis was a likely side effect fo the surgery. I opted to stop eating to fullness and start taking a daily thiamine supplement instead.
So far it's worked. 2 years episode free.

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