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Should I take Big 3 + inhaled ARIKAYCE

MAC & Bronchiectasis | Last Active: Aug 5 8:40am | Replies (144)

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@1fancydancer

CT Scan once a year to check for stability or more scarring from many infections other than MAC. MAC just seems to be a very severe one. I have two doctors that work in tantum, a Pulmonologist and Infectious
Disease Dr. Pulmonologist has run out of drugs and options so he bows to Infectious Disease. A pulmonologist will put me to sleep about every two years or so and wash out my lungs of mucus. Infectious Disease is scarred of MAC more than the other bacteria apparently and put me on the Azithromycin 3x per week. Not had it since. But have many other bacteria that I pick up. Had 2 bouts of Pseudomonas, 2 bouts of Burkholderia which is a super duper rare bacteria, and Covid one time all in 2023. We only test sputum when I figure out something is not right. I have a standing order at the Dr. Office when I bring in samples to test for Pseudomonus with one sample and all other bacteria for the other, what ever grows out. They go from there.

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Replies to "CT Scan once a year to check for stability or more scarring from many infections other..."

I fancy dancer,
Thanks for sharing.
So you are MAC free but caught other types of bacteria?
I hope you can get rid of all of them!!