I was diagnosed with a PSA level of 5.5 two years ago. Eight months earlier, it was 2.5. I wasn't feeling well, so I had a complete battery of tests, all of which came back negative. My doctor suggested running a PSA test, which I agreed to, and thus began my journey.

I had a prostatectomy on January 16, 2023. Four lymph nodes and the left seminal vesicles were positive and removed, along with a total of 19 lymph nodes but there was no distant spread Stage 4a. My PSA level was undetectable 8 weeks post-surgery and remained undetectable for the first 6 months. Then it started to rise slowly. When it reached 0.13. Off to the oncologist on April 9, 2024, and started Orgovyx.

Before starting radiation therapy, my PSA was undetectable again because of this drug I began radiation on April 23, 2024.

The side effects have been challenging: leakage, hot flashes, frequent night sweats, lack of sleep, elevated blood sugar, and low hemoglobin. The most concerning development was double vision, which began on May 31, 2024. My oncologist was alarmed and ordered a battery of tests, all of which came back negative, including an MRI of the brain and orbits.

My question is, has anyone experienced double vision as a side effect, which is listed on the Mayo Clinic site? How long did it take for normal vision to return? My ophthalmologist diagnosed it as palsy of the 6th cranial nerve and said it should take 4 to 6 weeks to recover (fingers crossed).

Lastly, my drug cost me $1100 first dose and has been consistent $603 for the refills, small price to pay for life. I'm 69 and hope to make many more b-days.