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Pancreatic neuroendocrine insulinoma

Neuroendocrine Tumors (NETs) | Last Active: Sep 20 5:34am | Replies (73)
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@htam4

I have the same situation as you from low blood sugar. I tried to find other options beside surgery. Now I also eat carbs every 2 -4 hours to keep myself alive. That also makes me gain a lot of weight. My tumor is on the head of pancreas 1.1 cm. It doesn't grow at all these 2 years .... I diagnosed in 2022 August

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Replies to "I have the same situation as you from low blood sugar. I tried to find other..."
margiefein | @margiefein | Jun 17 8:59am

Surgery is scary but my quality if life is poor. Lack of energy and I can't do alot. I have to eat in the middle of the night. I have also gained alot of weight. Once they take it out I should be cured. The chance of cancer or recurrence is 10% if the get clean margins. I am looking at either a distal pancreatectomy or a central pancreatectomy to remove the tumor. They will decide once they go in

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bnjncrew | @bnjncrew | Jun 18 5:47am

You could try cornstarch mixed in boullion before bed or my husband liked it in pudding. His sugars are stable now but he was on everolimus for several months and that kept him stable also.

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