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Pancreatic neuroendocrine insulinoma

Neuroendocrine Tumors (NETs) | Last Active: Sep 20 5:34am | Replies (73)

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@hopeful33250

Hello @margiefein and welcome to the NETs support group on Mayo Connect. I'm glad that you found this forum, it is a great place to receive encouragement and support.

You wrote the "If it has spread..." and I'm wondering if you have had a previous diagnosis of a NET in another location or if this is your first NET diagnosis? I would like to invite @ahtaylor to this discussion since she also has a history with insulinoma and many different treatments, including surgery.

From what you say, it sounds as if your blood glucose is affected by this condition. How long ago was this condition diagnosed?

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Replies to "Hello @margiefein and welcome to the NETs support group on Mayo Connect. I'm glad that you..."

I have had blood sugar issues on and off for 2 to 3 years. 6 months again I started getting moments of confusion and weakness. I then went incoherent and an ambulance was called my blood sugar was in the 30s. I was then given a Glucose Monitor and have been diagnosed with an insulinoma in the neck of my pancreas. This is the only location.