← Return to Pancreatic neuroendocrine insulinoma

Discussion

Pancreatic neuroendocrine insulinoma

Neuroendocrine Tumors (NETs) | Last Active: Jun 19 8:54am | Replies (52)
Comment receiving replies
@htam4

I have the same problem as you and always have low blood sugar syndrome. I tried to live with insulinoma with frequent meals and so on. Anyone to share with me what is your treatment if I don't want the surgery?

Jump to this post

Replies to "I have the same problem as you and always have low blood sugar syndrome. I tried..."
margiefein | @margiefein | Jun 17 8:30am

If it has spread the treatment listed to the only option. If it is a single insulinoma surgery is the best option. With time the symptoms will get worst and can cause black outs and coma if not managed. I have to eat carbs every 2 to 4 hours around the clock to stay alive. My surgery is in a week to remove it. There is a support group on Facebook just for insulinomas patients and is full of information. They have three groups one for suspected, one for diagnosed and one for multiple or metastatic

VIEW AND REPLY