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Pancreatic neuroendocrine insulinoma

Neuroendocrine Tumors (NETs) | Last Active: Sep 20 5:34am | Replies (73)
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@htam4

I have the same problem as you and always have low blood sugar syndrome. I tried to live with insulinoma with frequent meals and so on. Anyone to share with me what is your treatment if I don't want the surgery?

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Replies to "I have the same problem as you and always have low blood sugar syndrome. I tried..."
margiefein | @margiefein | Jun 17 8:30am

If it has spread the treatment listed to the only option. If it is a single insulinoma surgery is the best option. With time the symptoms will get worst and can cause black outs and coma if not managed. I have to eat carbs every 2 to 4 hours around the clock to stay alive. My surgery is in a week to remove it. There is a support group on Facebook just for insulinomas patients and is full of information. They have three groups one for suspected, one for diagnosed and one for multiple or metastatic

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