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Symptoms after you stop prednisone

Polymyalgia Rheumatica (PMR) | Last Active: Jun 18, 2024 | Replies (15)
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@wilmingtonemperor

I am trying to make a tight fist with my right hand and I can’t. This started about 6 weeks ago after being off prednisone and Kevzara since February. Stiff right shoulder and can’t get my class ring on my right hand. Using Tylenol 500 and Volteran on the hand.
Good Luck

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DadCue | @dadcue | Jun 17, 2024

Making a tight fist every morning brings back memories for me . I did this so many times. Sometimes I was only partially awake. Making a fist was a good indicator of how active PMR was and how soon I would need to take prednisone.

I'm not taking Prednisone anymore. I do a monthly Actemra infusion instead. Actemra works for an entire month but I went 7 weeks between my last 2 infusions. I noticed having more difficulty making a tight fist. My inflammation markers were checked before my last infusion and they were elevated. My rheumatologist said I need the infusion every 4 weeks.

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