Welcome @tomvan, I'm sorry to hear you have Irreversible Bilateral Vestibulopathy. I know it must be terribly difficult to manage. You will notice that we removed your phone number and your wife's phone number from your post to protect your personal privacy since Connect is a public forum and available to anyone with Internet. Members can exchange personal contact information using the private message feature of Connect. You can find out more about using private messages and other features of Connect by clicking the Help Center link at the top of any Connect page. Here's the direct link - https://connect.mayoclinic.org/help-center/.

The Vestibular.Org website has some information you might find helpful if you have not seen it already - https://vestibular.org/article/coping-support/.

It sounds like you have seen a lot of specialists with no suggestions. Did your doctor provide any suggestions for what might help you manage the condition?