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Severe Tortuous & Redundant Colon
Digestive Health | Last Active: Jun 18 7:40am | Replies (42)Comment receiving replies
I'm reading a lot of good info on this site. I had a failed colooscopy, 2 failed barium enema procedures, severe rectal bleeding, failed rectal endoscopy, repeated endoscopy with mini-equipment and was then found to have tortuous colon (duh!). A prescribed high fiber diet resulted in more misery, 15 or more BM's a day. Carried a bedpan in the car which I used frequently. Had emergency surgery for intestinal volulous and blockage. Prescribed liquid diet gave me burning acidic diarrhea. I previously had aggressive radiation for a vaginal cancer and my rectum was burned and the muscles are impaired, some overly strong, some very weak. Low fiber diet seems helps to minimaze BM's but get a lot of pressure/discomfort. Doctors say there is nothing they can do because of massive internal scar tissue/adhesions. Online diets are conflicted. I need help!!!!!
Replies to "I'm reading a lot of good info on this site. I had a failed colooscopy, 2..."
Hmmm. I have a difficult gut and eat a lot of vegetable soups and hot cereals. I like lots of liquids (hot drinks, water), as I think they help move things through my extra long colon. Dense foods in smaller amounts or none, as they constipate. And a host of other limitations food-wise must be followed too as I ruined a "born with" sensitive gut with junk food for too many years due to youth and ignorance.
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OMG!!! Have you sued your doctors yet?!! I am so sorry about your cancer and the treatment. You mentioned your muscle changes. I have been learning how they affect our BM's. I have smooth muscle weakness, almost no intestinal muscle movement. Mine is @ least somewhat caused from my HPTH and elevated calcium levels, for 5-7 yrs. My parathyroid glands are whacko, pushing calcium into my body when I don't need it. So, I have to have 3 1/2 of my parathyroid glands removed. No doctor ever mentioned anything about this to me and I should have been monitored for this since my celiac diagnosis. I have had CIC for 17 years. Small bowel partial blockages, 3 blockages in anus that required "digital removal ", with my finger. Been on every drug. My GI was terrific for my endoscopy that shocked me with a Celiac Disease diagnosis, I was and am asymptomatic. But when his narcissistic arrogant way of treatment was not working, he literally quit taking my calls/emails. For me, I eat a very very bland diet with little solid foods, drink meal replacement shakes (my daughter has issues too, she did all the research, so I trust the shakes). I use 3-6 capfuls of miralax to keep my 💩 runny mush-diarrhea. I was using Metamucil fiber daily, but it just makes me stopped up. I use it now, only 1-3x week, with extra miralax. I understand the pressure pain, it's terrible. It ranks up there with childbirth. Mine is usually air pressure, different than gas. I run to the toilet thinking it's 💩💩‼️, but there's a horrendous explosion of air, maybe some poop specks. I have had X-rays standing and laying of my colon every few months for 10+ yrs, my colon always (except 1x) has a moderate to heavy fecal load. I hope my story might be of some help to you. For the burning part I immediately sit on a heating pad or get in a hot bath with little water. I have also gotten over my anxiety about putting LOTS of Vaseline or hemorrhoid cream , with glove on, up my bum.