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Myelodysplastic Syndrome (MDS): Did you have stem cell transplant?

Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Jun 27 8:12am | Replies (54)
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@ldl1

I have MDS and was being treated with Azacitidine. I tolerated the medication very well, and did well until my wbc count kept dropping. The treatment is on hold, and I am getting ready for transplant in 1-2 months.

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Replies to "I have MDS and was being treated with Azacitidine. I tolerated the medication very well, and..."
Lori, Volunteer Mentor | @loribmt | Jun 16 3:53pm

Hi @ldl1 Welcome to Mayo Connect! We have several members in the forum who have had an Allogenic stem cell transplant for MDS. Some forms of MDS can progress to a more aggressive form of leukemia called AML. A bone marrow transplant is the only potential cure for these conditions so your doctor is recommending that you have this done now, while you’re in a period of remission.

We have a fairly active support group in this current discussion link below. I started it a few years ago after my bmt for AML. I’m now coming up on 5 years post transplant in just a few days. There are so many encouraging stories I hope you’ll read some of them and join us there. @katgob just had her SCT for MDS, 67 days ago and has been updating her story for us on a regular basis.
Here is the link:
My bone marrow transplant story; Will you share yours?
https://connect.mayoclinic.org/discussion/my-bone-marrow-transplant-bmt-story-will-you-share-yours/
Do you have any questions about the transplant?

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