← Return to Salvage radiation therapy after radical prostatectomy

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@ctdds

RP in 2013. Positive PSMA PET in 2023 at PSA 0.23. Just completing 6 months ADT and prostate bed salvage radiation (X36). Here are my thoughts. DON'T PANIC. You have time to sit back, do your research and make the correct decision FOR YOU. If you read all the comments about negative side effects you will be paralyzed with fear. (I know I was.) There is no way to predict what YOUR journey will look like. My guess is the vast majority of patients have manageable side effects and don't bother to write comments or posts. 1: You have time to get multiple second opinions from top doctors at major teaching hospitals and center's of excellence. This is SO important. (I had six different opinions!) In the end I travelled 1200 miles to Mayo in Rochester, MN to receive treatment. 2: Exercise! Movement is medicine!. You don't have to run a marathon but you do have to get off the couch. 3: Figure out what makes you happy and DO IT! 4: Surround yourself with positive people and smile. You have one life, one journey. You're in charge! Sending positive thoughts your way.

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Replies to "RP in 2013. Positive PSMA PET in 2023 at PSA 0.23. Just completing 6 months ADT..."

Dear Fellow: Your post is most comprehensive and filled with empathy! I truly appreciate it...
1.As far as opinions, I have spoken with 3 rad-oncs and reviewed guidelines. They all recommend salvage RT to prostatic bed but no ADT. As far as side effects, the forum may not have posts from fellows who don't have side effects. I think I have a good rad-onc, knowledgeable and easy to reach and communicate with. He is trying to balance timely treatment and not over-treatment.
2. I love exercise and so hopefully I will continue.
3. Your point about doing what makes one happy and surround with people with positive people and live one life is so crucial...
Thank You dear...