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Internal vibration with "nerve firing"

Posted by brayimee @brayimee, Aug 2, 2020

Hello everyone! I am so very happy to have found MayoClinic discussion boards.

My doctors are becoming very stumped on my case and I am becoming more hopeless as to them finding the issue. I am a 41 one year old mother of 5 and was incredibly active with weight lifting, HIIT workouts, very active in my home and with my kids. One day in early April, I just stopped working. This has taken a huge toll on me and my family as I am resting 90% of the day as to stay comfortable.

my story is long, so I will shorten it for a quick read. about 5 months ago, the left side of my body decided to cause me major issues. I feel like it completely shut down. I get terrible internal vibrations and when they stop, I feel this strange release and I get different nerve pains in my left side and right glute. Following these "episodes" my legs get so terribly weak (sometimes overall weakness), I feel like I am going to fall and my bowel and bladder continually become disrupted. I started to monitor my pulse during these episode and see that much of the time they work together somehow.
**An example: I will go up my stairs and my heart rate will Increase to 150 and I will notice I am also having an internal vibration. When it stops, I feel this flow through certain nerves, my legs get very heavy and weak, I have had numbness/tingling, and sometimes I get an urgent need to urinate or I start feeling my Bowels moving and making noises. I told many doctors I feel like something is misfiring, pinching nerves or causing vascular issues, but no one can find anything. I feel the best when I am laying down on my back and just resting. I use tennis balls along my spine to try and help pass gas (I feel like my intestines shut down constantly). Many times when I am just resting, my pulse will climb and I will start feeling all the nerves sensations and weakness setting in. The vibrations happen all day and wake me up in the night even on medication. Its a continuous cycle all day everyday and it's so very odd. I admit it gets me down going from incredibly fit and healthy to laying in bed, having bowel issues, bladder issues and very weak legs.

I'm looking to connect with those of you who have any suggestions or knowledge on my particular issue.

I had a battery of tests thus far : 2 CTS with contrast, Blood work, urinalysis, Thoracic MRI, Brain MRI (Pending results), ultrasound, HIDA scan, wore a heart monitor for 2 weeks, ECHO, 2 EKGs, Endoscopy, Multiple X-rays, Lumbar MRI (pending), I am in PT and seeing a Chiropractor, vaginal ultrasound. I am sure I am missing something, but I have been scanned pretty thoroughly.

Findings: 2 hemangiomas T1 & T11( where I get back pain), PACs, SVTs (Never have had heart issues), bochdalek hernia ( 1st CT, 2nd CT didn't show).

Specialists/Doctors: Cardiologist, GI, Neurologist, OBGYN, Primary care doctor, PMR doctor, Physical therapist, Chirop

Thank you for reading!!

Interested in more discussions like this? Go to the Brain & Nervous System Support Group.

elisabeth007 | @elisabeth007 | Jun 15 8:01pm
In reply to @cjozwiak "I have had the same problem for many years. Been through so many tests over 9..." + (show)
@cjozwiak

I have had the same problem for many years. Been through so many tests over 9 years. Now esophagus is not working properly, have Hashimoto's but my thyroid is still kicking. Finally had blood work done that shows I have Connective tissue disease with overlap. So far, it's Scleroderma, Lupus, Raynaud's, and a few more. Possibly have them do bloodwork for autoimmune problems. Stick to your guns with the doctors. Sometimes it takes years to figure these out. Big hugs.

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i agree autoimmune diseases often take years to diagnose

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jenatsky | @jenatsky | Jun 16 12:04pm
In reply to @internalvib "Thinking outside the box…I wonder if “some” of these internal vibrations being reported throughout this blog..." + (show)
@internalvib

Thinking outside the box…I wonder if “some” of these internal vibrations being reported throughout this blog could be related to our sensing an overload of our natural internal energies? Which drive all our individual autonomic nervous systems. As an example, we breath air, our heart beats, etc. for the most part subconsciously, but like the sleeping cat we only focus when there is a differential change; something not within our normal functioning. If your arm is suddenly injured we hyper-focus our attention to that injury. But, if suddenly we sense a new sharper pain somewhere else on our body we re-focus a vast majority of our attention there, away from our initial injury; the arm. Try refocusing your attention to an area that is normal, if possible. That may actually help? The causes for these vibrations likely run the gamut from newly sensed normal to dangerously abnormal. However, medical doctors use a standardized learned terminology; not our lay description's, so our descriptions may not compute, or fit their differential analysis. I once went to Norway where their English is like perfect. I was raised in Southern California and unconsciously use a lot of slag. A lot of the time they had no idea what I was saying…then I realized they never learned 1960’s local slang; especially from Southern California. That was a wake up, From their perspective, I didn’t speak understandable English; my native language. 🤔 We only know what we think we know…as we age we realize…

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@internalvib based on your idea of bodies energy consider the amount of exercise you do daily and does this allow your body to rid itself of excess energy? I’ve found that if I exercise/stretch before bed I’ve eliminated any RLS symptoms. I also walk 2 miles daily so I know that I’m ridding myself of any excess energy stores.

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elisabeth007 | @elisabeth007 | Jun 16 12:52pm
In reply to @champton "Brayimee, does your Vibrations ever stop or go to a diff speed? Have you taken any..." + (show)
@champton

Brayimee, does your Vibrations ever stop or go to a diff speed? Have you taken any certain Vitamins or just reg every day Vit. ? Also have you been on any Prednisone ? These are hints that I’ve been researching. I too have been to numerous Drs. Who has NO idea what I’m experiencing. I’ve had them since Sept 20’. It’s miserable. Mine started in my left foot then next month it was at both knees by thanksgiving it shot up to my Bra line. So many tests. I feel like a Guine Pig. I go see another Nuerologist on Wed. @ Henry Ford. All this has taken a toll on my body. I feel like I’ve aged 10 yrs. I can’t sleep. I get 1-6 hrs a night. Sometimes I don’t at all like it’s 5:30am so what’s use of it now? I’m still trying to help get these Drs attn n looking up hints that’ll direct them which Dr to send me next. I’m not kidding, each week it’s a new Dr. my family has been trying to get me to start logging in my foods, Vits. Etc each day n go back over it to compare any days to each other. Well it’ll soon be 4 yrs this Sept. I’m leaning towards a pinched nerve n gonna Beg the Drs to re-check my MRI n see if they can see anything. Keep in touch on what you find out about your findings. I learn a lot from here. God Bless. Ohh, did I mention these internal Vibrations are 24/7… they never stop unless I’ve had a steroid. But that’s sometimes a 50/50 chance. It feels like grinding to the trunk of my body. It’s really bad at my groin section. I might be okay with it if I could only get rid of the Vibrations that goes down my leg to my feet. But I tend to fall over. I loose my balance. I too have had incontinence issues but been a yr since that happened. I have a feeling this all started from a bad vertigo spell where I went down hard. Try keeping a log n see if you notice any changes in your routines. Even cut back on caffeine. I hardly get any.
God Bless our Country 🇺🇸
Keep in touch.

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Perhaps you may want to consider seeing a “movement disorder” specialist. its a sub speciality of neurology and he subpeciality hasn’t been around that long. Those drs specialize in diagnosing and treating atypical movements. Good luck!

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clarabell | @claremcglo62 | Jun 19 2:33pm

Hi all did anyone figure out this condition? I seem to be getting the same symptoms and could really use some advice. Is it long Covid? Menopause? Hope everyone recovered. Sending prayers. Xx

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1 reply
jojo | @jord | Jun 20 12:59pm
In reply to @claremcglo62 "Hi all did anyone figure out this condition? I seem to be getting the same symptoms..." + (show)
@claremcglo62

Hi all did anyone figure out this condition? I seem to be getting the same symptoms and could really use some advice. Is it long Covid? Menopause? Hope everyone recovered. Sending prayers. Xx

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Maybe Parkinson's or med side effects? Ask a neurologist check you. Don't just believe what your doctor says. Ask for a proof. If he says it's Parkinson's, ask how he knows it is P. Just shaking does not mean you have neurological issues. I think nowadays they can find out with Brain MRI, but not sure.

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tennis123 | @tennis123 | Jul 22 6:54pm

I suffer from many of the symptoms you describe here. In addition, I have terrible hot flashes and profuse sweating (mostly in the morning or at night) as well as terrible chronic neck pain with no cause seen on my cervical spine MRI. I plan to push for upright dynamic MRI to see my cervical spine in flexion and extension to see if something is getting compressed with motion.

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