← Return to Brain Demyelinating diseases OTHER than MS

Discussion

Brain Demyelinating diseases OTHER than MS

Brain & Nervous System | Last Active: Jun 17 12:40pm | Replies (8)

Comment receiving replies
@celia16

That’s how I’m trying to cope. I’m rather overwhelmed at the moment. Trying to stay positive. You sure have a great attitude. Do you have support around you?

Jump to this post


Replies to "That’s how I’m trying to cope. I’m rather overwhelmed at the moment. Trying to stay positive...."

I'm blessed to have my hubby of 53 years💝. He does help in many ways to relieve me of taxing chores, has a great sense of humor so does make me laugh (at what our kids say are "corny dad jokes"!). He accompanies me to medical visits and waits patiently, God bless him! Our older daughter lives within our town, less than 6 minutes away, with her teen sons and husband. They provide emotional support, but lead such fully packed schedules that we don't see them often enough. We do phone chats, and the boys text with me (I love doing that). Hawken even calls me from Plattsburgh U. (where he just completed freshman year, studying graphic design) "...just wanting to know how you're doing, grandma." We can spend up to 30 minutes or so as we talk , and he fills me in about life on campus, his courses, activities, etc. He and brother Hudson are very affectionate and tell me often how much they love me. Their mom travels a great deal for her company business so we don't see each other often. But she texts during her travels, sends me photos to keep me informed, phoning on route when possible. I used to have the four of them over for dinners once in a while but over time found that I'm not up to all the extra work involved. Very draining. Our younger daughter Denise lives in Boston with daughter age 8 and son age 10, and hubby. They make trips here a few times a year, including Thanksgiving. She's in pharmaceuticals and was pre-med at Carnegie so she has so much info that she can guide me with. And I'm fortunate to also have a cousin living one town over; we sometimes have long conversations that are gratifying; we both believe in the power of prayer so we engage in mutual prayers. I'm a very private introvert so I don't confide in anyone else. I immerse myself in my writing (memoir, children and young adult), and researching online. I am a retired secondary and graduate school instructor, and it's refreshing having time to do (or not, if I so choose) whatever most appeals. There are indeed benefits to being retired.😊