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Have you got Primary Progressive Apraxia of Speech? Let's connect
Brain & Nervous System | Last Active: Nov 7 4:35pm | Replies (45)Comment receiving replies
Welcome, @101margu. sometimes it takes one person, like you, to get the discussion rolling and to give confidence to other members who have primary progressive apraxia of speech (PPAOS) to join in. I look forward to learning more about you.
How long has it been since you were diagnosed with PPAOS? What is one thing or tip you would tell someone who have been newly diagnosed? Or what do you wish people know about living with PPAOS?
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I was first diagnosed with non-fluent PPA in 2021, and in 2023 diagnosed with apraxia. Living with PPAOS is helped by support from others: I attend conversation groups on zoom, book club for people with aphasia, and in-person events organized by Minnesota Connect Aphasia Now. https://mncan.org/
The organization has many programs for PPA, now including PPOAS. Yay, MnCAN!!