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New Diagnosis - is drastic surgery needed

Colorectal Cancer | Last Active: Nov 26 6:05pm | Replies (9)

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@a32ht99

I had a tumor right across from the ileocecal valve, found with my first colonoscopy at 54. In March, I had the right side of my colon and appendix laparoscopically removed. Stage 2a tumor, luckily didn't spread to any lymph nodes or elsewhere.

I had surprisingly little pain in hospital and while the doctors offered to release me the day after the surgery, I opted to stay another day since it was hard to walk to the toilet and I was having many loose stools. My poor husband had to raise me on and off the toilet as I was numb with the spinal block .

I would recommend the best ranked medical center for colon cancer you can go to. And screening the surgeons to select one well experienced in the procedure. I had mine done at a top 25 for colon cancer treatment, luckily near home. But if it had turned out to be a cancer that needed chemotherapy, I planned on going to Mayo. You want the best care for the best possible outcome.

In about a week, I was moving around pretty well. It has been 3 months and I eat normally, but do have occasional constipation, which is nothing new to me.

My oncologist has me taking Signatera blood tests to watch for a return, I would recommend asking for this screening since a sample of your tumor is needed. Every 3 months, a blood draw is screened for the tumor markers. So, negative results give you peace of mind.

Best wishes to you for a successful treatment and recovery.

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Replies to "I had a tumor right across from the ileocecal valve, found with my first colonoscopy at..."

Thank you for sharing. Your experience so far is the same path my husband is on. He had his first colonoscopy 4 years ago, and it was clear. Last year, his blood work started showing a noticeable decrease in hemoglobin. They decided they had celiac disease. Then, he had what they thought was a ruptured hemorrhoid.....this colonoscopy showed the tumor. CTs so far don't show any invasive action.... Surgery in a couple of weeks will make that call.

Thanks for the advice of the Signatera blood test. I will add that to my list of questions. I have started a notebook with all the tests, results, etc