← Return to 3+3 - others' experiences and questions I should ask doc?

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@robo45vt

I can’t believe you can stay on active surveillance that long. You are lucky. Most people I know have been on active surveillance for 1-3 years then had surgery. I have been on active surveillance for 13 months. PSA now 12.5 having RPR on August 8th. Kinda of feel like my life as I know it will be over. Not looking forward to it. Surgeon has done over 300 surgeries. I have been doing kegel excersizes fo months. Trying to stay positive

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Replies to "I can’t believe you can stay on active surveillance that long. You are lucky. Most people..."

I am not going to try to justify my decision whether good or bad. It was the only one I could make in my mind. I was 68 and healthy. No issues with erections. I too was worried. I talked to my wife of 50 yrs and she said no big deal. we can work it out. I didn't lose any desire. My testosterone has remained stable. My wife got cancer while I was recovering. 4 years now with no sexual stimulation. So I don't even know if I can make it work. I also had issues with wearing pads. I hated the thought of a wet one. Very inconvenient. I can sleep at night without one. I have to get up about 4 times. I decided to wear a condom catheter with a 160oz leg bag. I wear it every day while awake. No one knows and I can go to the gym , work, do anything. I dislike the inconvenience the leg bag offers. Dr hates it . It doesn't make you practice holding. Looking into an AUS. But my point is yes it changed my life. But I am 72 cancer free with no treatments. My body is strong. My mind is healthy. I feel more positive than negative.

Did your PSA rise while on AS over those 13 months? Did you have another MRI or biopsy?

May your surgery be successful and the recovery go well.

Your life will not be over after RP.
Age 72 at surgery, now 74, and never lost continence.
Sexual function has returned to an acceptable degree.
Physically, maybe a bit more fatigue.
Other than the SE of persistent worry about recurrence w/ G 9 and EPE, no issues enjoying life.
A suggestion would be to ask for contact with a prior surgical patient or 2 of your surgeon for their experience.
I did have surgery at Johns Hopkins, which is a Center of Excellence (COE) for prostate cancer. Such facilities have very experienced surgeons and good track records.
Best wishes for a successful treatment.

Keep doing those Kegels. I was obsessively doing them prior to and aftern my surgery last November. Successful surgery with NO incontinence afterword. PSA currently < 0.01. Hope and pray for more of the same. Best wishes!