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Has Anyone Had a Cytokine Panel

Polymyalgia Rheumatica (PMR) | Last Active: Jun 16 3:37pm | Replies (9)

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@dadcue

My rheumatologist has talked about targeting other cytokines if Actemra stops working. Then he talks about upstream and downstream regulation and cross talk. I have no idea what he is talking about.

I have concluded there aren't single isolated inflammation pathways. It sounds more like an inflammation network of pro-inflammatory and anti-inflammatory cytokines. Some cytokines are both pro and anti-inflammatory. I don't think I will understand it anytime soon.

Maybe that is why they don't order Cytokine Panels because nobody understands them.

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Replies to "My rheumatologist has talked about targeting other cytokines if Actemra stops working. Then he talks about..."

Never heard the word "cykotine" until my daughter was diagnosed with long covid. I just know it's an inflammation marker if labs are high.
Sounds like you and your rheum are on to something!
Are you feeling better? Still on pred?

I see a few on these sites have used LDN as means to regulate microglia and cytokine types of inflammation. Maybe those that were helped just dont come back to these sites. But the ones that have been vocal seem to think it helps.