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Surgery for thoracic outlet syndrome

Bones, Joints & Muscles | Last Active: Jun 16 4:14pm | Replies (5)

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@jenniferhunter

@snowmass I think we have communicated before. I have TOS and have had a cervical spine surgery fusion. The scar tissue from that is very close to the TOS issues, and the TOS issues also tend to cause spasms and rotate my spinal vertebrae escalating compression on nerves in the shoulder because that side is tighter. Since you had a lung removed, you do have surgical scar tissue that may be affecting your TOS. Any surgery adds more scar tissue and tightens the fascia and that is why TOS surgery doesn't have great statistics for success. The vascular thoracic surgeon who diagnosed mine years ago said surgery was only about 60% effective and could make you a lot worse because of scar tissue. I believe that. I had not had surgery until the C5/C6 fusion which initially made my TOS worse by causing inflammation and then tightness nearby. I have to periodically stretch everything to relieve the pressure. Surgical scar tissue can be loosened with myofascial release stretching. My tightness extends from my neck and jaw, through my rib cage and to my pelvis. It causes one side of the pelvis to be pulled forward, and it limits the proper expansion of my rib cage on that side. I was getting a lot of respiratory infections because that side didn't move enough to move the phlegm out and I have allergic asthma. I work on this to get that side moving better. TOS isn't just a shoulder/neck area issue; it affects the whole body and proper alignment and movement. My PT always used MFR when getting my cervical spine realigned, and also used a Dolphin Neurostimulator to block pain signals at the nerve roots. That was before my spine surgery when there were lots of muscle spasms.

Myofascial release helps a lot, but it take weeks of work. It is worth locating a therapist with an expert level certification in the John Barnes methods of myofascial release and trying this to see if you can improve your condition. Once you understand this, there will be things you can do at home to continue working on loosening fascia. I do get locked up in my neck from time to time, but for the most part, I can resolve those problems on my own by replicating what my PT has done using tools like balls, etc and using my own body weight against them. I listen to where my body is tight and I will move into a position that stretches the tight area and hold it while I can pull on that area with something, perhaps even my hand to create a shearing action. I just wait until the tightness subsides, and I am feeling fascia releasing when that happens. I know I'm successful because it relieves the pain immediately and numbness on the side of my forearm. If I do something with excessive yard work like pruning and clipping with manual tools, it can kick up the neck spasms and aggravate the TOS. I just had that happen , but I've been improving over the last several days because of doing my own physical therapy.

Surgery is a last resort. With your various surgical consults for TOS, have the surgeons explained their positions of why they recommend their procedure over the other suggested procedures? Are any of them familiar with myofascial release? MFR was recommended to me by that vascular surgeon who diagnosed me years ago, and I have been dong MFR on and off for the last 14 years with my physical therapist. I also helped a lot with my spine surgery recovery.

I may have shared this discussion and provider link with you previously.

Neuropathy - "Myofascial Release Therapy (MFR) for treating compression and pain"
https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/
MFR provider search
http://mfrtherapists.com/

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Replies to "@snowmass I think we have communicated before. I have TOS and have had a cervical spine..."

Yes we have. Since then my TOS has extended to my left side as well and currently getting a lot of sinus and eye pressure making much heaviness in the head. The doctors I have seen did not mention MFR but Botox injections and surgery as the ultimate solution with first rib removal for less chance for recurrence. Success rate they mentioned was about 74% if i remember correctly. Do you get much sinus/head pressure from TOS? Did MFR help with it? Because of my neck tightness/pain I am a bit afraid to combine my PT currently focused on Neck decompression with MFR for TOS… what are your thoughts?
Since I was denied from Mayo perhaps i should try Cleveland clinic…
As for my cervical issues, I have c5-6 disc burge and c6-7 stenosis with multiple areas of facet joint disease. Several doctors I have seen did not recommend any surgery but pain mgmt for steroid injection tries…