I can only imagine how alarming this must be, and at the same time, it strikes me that orthostatic hypotension is, in some people, a marker for dysautonomia, or dysregulation of the autonomic nervous system. In other threads, I have been posting about my own journey of discovering that my post-COVID syndrome seems to mirror or form exacerbated versions of various conditions I´ve had since childhood. I then remembered that a cousin of mine has POTS (a form of orthostatic hypotension), which is typically classified as a form of dysautonomia. Then I began to see writings about long COVID closely resembling, in some patients, the syndromes associated with dysautonomia. When I clustered my lifetime of troublesome disorders, I could link every one of them to research findings supporting that all of my health problems, to date, have been seen across the population of patients diagnosed with dysautonomia (and my biggest tip-off, in this, was my acquired mitral valve prolapse). From there, I discovered that there is whole body of fascinating research and writing by the late Dr. Derrick Lonsdale of the Cleveland Clinic, regarding the unmistakable connection between chronic acute and subacute thiamine deficiency and dysautonomia. So I have embarked on a long-term program based on thiamine supplementation, and while itś early days, still, I have new hope now. I imagine that your doctor(s) have explored all possible cardiovascular features of your new hypotension and made sure that there aren´t findings unrelated to possible dysautonomia, when I share all this. . .But if the origin of the hypotension is mysterious, please consider delving into the literature available today on dysautonomia and how many people experiencing this get better. The type of doctor who tends to recognize and treat dysautonomia is often working in the field of Functional Medicine or Mitochondrial Medicine, btw. Please have hope. Itś possible that you can and will get past all this.
HI..thanks so much for your reply. When I first started going to Mayo after having Covid for the first time in December 2021, Dr. Van thought I might have had POTS but my insurance would not pay for the tilt table test. So the fainting continues to be an issue. I have a heart monitor on and I wear that for two weeks. This is scary, as the last two incidents of fainting have resulted in injuries. How much Thyiamen do you take? I am willing to try anything. No one has ever brought that up before. I am open to any suggestions you have because I fear fainting and falling again. Thanks for your reply. I live in Minnesota so how can I find a functional Medicine provider? Thanks again..Sincerely kitty2