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← Return to Prednisone to Kevzara back to Prednisone. ( Hope not )
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Prednisone to Kevzara back to Prednisone. ( Hope not )
Polymyalgia Rheumatica (PMR) | Last Active: Jun 16 9:48am | Replies (14)Comment receiving replies
Right now I am almost transitioned off of prendisone 1mg to go : been on kevzara 3 months ; pain has returned but feels different: cannot get up from a sitting position because of weakness while standing : now have a low white count and looks like I will have to stop Kevzara : very nervous about my future dealing with pain
Replies to "Right now I am almost transitioned off of prendisone 1mg to go : been on kevzara..."
As far as the leg weakness you could get a referral from your doctor for P.T. That could involve just a visit or two for an exercise program to safely do at home. I'm a retired P.T. and have some simple things in mind but of course won't recommend anything over the internet! I have been on prednisone over 2 1/2 years and my strength has not declined so the problem could be a lack of exercise.
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You got this. I agree with Linda. You have been on prednisone for 2 years so its going to take some time to restart. It can take several months after your off. My sitting is the hardest thing as well. Particularly the height of the toilet. There was another thread on here about life after prednisone not feeling quite the same. We all agreed we felt a little older(which we are)in our daily activities. I did find that OTC medications help some at this point. They dont do much for PMR but helped some during and after the taper. I would take an Aleve in the morning and Tylenol PM at night. Work with your DR. Looks like the Kevzara has worked just the side effects. Another IL-6 inhibitor that works for Dadcue on this site is Actemra. He is on it full time with no side effects. (but everyone is different) Also like Linda mentioned just stay at the 1mg for awhile and let your body settle. Dont rush at this point and cause it to flare back up.