← Return to Proton Therapy: any long term side effects? Any reqrets?

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@jc76

@oskarpr
You have come to the right place for those who have had proton radiation treatments. I had 30 rounds of pencil beam proton radiation at UFHPTI. I am a patient as Mayo Jacksonville but at this time they do not offer proton radiation just photon.

I did not have hormone treatments. If you are considering radiation treatments first you need to know your PSA levels, level of your cancer, and get some additional test (suggestion). If you have prostrate cancer some of the test that can really help you decide which treatment are the PSMA, bone scan, and Dechipher. With those tests your urologist, and R/O can really fine tune the BEST treatment for you. If you want to go even futher get a second opinon which you see is quite common at MCC.

For my experience. I had some slight fatique about 3 weeks in. Was told most likely woud as body is fighting the radiation damage. I had more frequent urnination and urgency. I also had the normal sun burn type burn on each side of hip where protron radiation goes in.

Now long term. It tookd a couple of months for drippling, urgency, on urnination to improve but it did. The fatique went away after treatments stopped. The radiation burns on side of hips took several months to go away.
If you are not having hormone treatments your treatments with proton radiation is going to have some side affects both short and long term but the norm is that are mild to most but not all patients. Those that get the hormone treatments is another whole story with some having some real extreme side affects but soem also not severe at all.
Good luck. Coming to MCC is a great start. I wish I had known about it when I started my treatments. I did not hear about it until I started treatments and would have been a much more informed patient if I had known about MCC.

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