1. < Neuroendocrine Tumors (NETs)

Neuroendocrine tumour in Pancreas

Posted by clorey @clorey, Aug 15, 2018

I had a number of tests done lately to find out what this pain I am having is about. I went to a cancer Dr. and she told me that the chances of this tumour ever becoming cancer is less than 1%. Is this true? The tumour is in the head of my pancreas and has not changed in 11 years. Just need some reassurance as I still have so much pain in my chest and stomach thanks very much

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

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Teresa, Volunteer Mentor | @hopeful33250 | Aug 18, 2018

@clorey

But what kind of cancer did it test for? There are a number of blood tests that you should have for NETs. As I said before the blood tests for NET are different than the regular cancer blood work.

If you have a patient portal where you can read the lab/x-ray reports, I encourage you to take a look at that.

Teresa

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clorey | @clorey | Aug 18, 2018
In reply to @hopeful33250 "@clorey But what kind of cancer did it test for? There are a number of blood..." + (show)
@hopeful33250

@clorey

But what kind of cancer did it test for? There are a number of blood tests that you should have for NETs. As I said before the blood tests for NET are different than the regular cancer blood work.

If you have a patient portal where you can read the lab/x-ray reports, I encourage you to take a look at that.

Teresa

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Thx so much. I will get back to you. I have to go out now.

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1 reply
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Sep 17, 2018
In reply to @clorey "Thx so much. I will get back to you. I have to go out now." + (show)
@clorey

Thx so much. I will get back to you. I have to go out now.

Jump to this post

Hello @clorey

I was thinking about you and wondering how you are doing.

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pleasehelpkona | @pleasehelpkona | Jun 14 9:56am

Go to a different dr. Pursue now before it’s not easily operable. My doctor said nothing in head of pancreas even though enlarged (in 2005) and now I have huge mass entangled and difficult surgery whipped procedure (if even possible).

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Teresa, Volunteer Mentor | @hopeful33250 | Jun 14 10:48pm
In reply to @pleasehelpkona "Go to a different dr. Pursue now before it’s not easily operable. My doctor said nothing..." + (show)
@pleasehelpkona

Go to a different dr. Pursue now before it’s not easily operable. My doctor said nothing in head of pancreas even though enlarged (in 2005) and now I have huge mass entangled and difficult surgery whipped procedure (if even possible).

Jump to this post

Hello @pleasehelpkona and welcome to the NETs support group on Mayo Connect. I'm glad that you found this forum. I found this group prior to my third surgery for NETs in the upper digestive tract.

I am sorry to hear that your NET has grown and has become entangled. Have you considered a consultation with a NET specialist? These are oncologists who have special training and expertise in treating NETs.

Mayo Clinic has NET specialists in all three of their locations. If you would like a second opinion with a Mayo doctor here is a link with appointment information, http://mayocl.in/1mtmR63. If, for any reason, you cannot be seen at Mayo, here is a link that lists NET specialists throughout the U.S. as well as worldwide, https://www.carcinoid.org/for-patients/treatment/find-a-doctor/

How are you feeling @pleasehelpkona?

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