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DiscussionSquamous Cell Vulvar Cancer: Who out there has this cancer?
Gynecologic Cancers | Last Active: Dec 15 4:51pm | Replies (282)Comment receiving replies
Replies to "I had modified radical vulvectomy on October 26, 2023, with 1 right groin lymph node testing..."
(following my timeline of events.... ) I am (now 58yrs old)-- I found out I had squamous cell carcinoma-- vulvar cancer in Feb '23. (I have since reconfigured my whole diet & cut cetain foods from my life, I've started eating more fresh fruits & veggies, less candies & sweets. Cancer thrives on sugar!! That being msaid-->> I had a radical vulvectomy in Apr '23-- 3 of 5 lymph nodes in my L groin were involved (the R 1s were checked, & they were neg) My clitoris was totally involved & both labia had involvement. I started with 2 large lesions (1 on my left labia & 1 right inside the vaginal canal). In May '23, 2 more lymph nodes came up positive, so I went back in back in for more surgery. In June '23-- I filed for SSDI, I started 33 rounds of radiation & 7 chemo treatments. (The radiation towards the end of treatment-- in Sept, was murder on my skin). I ended up quitting my job & picked up private Ins., through the market place. I got approved for Medicaid in Dec '23., & finally started getting SSDI in Nov. The pet scans & CT scan were going fine, into Nov '23. A radiologist read the pet scan wrong & missed a nodule that popped up on my pelvic groin area, but another radiologist saw it. At the end of Dec '23, I had a pinkie-nail sized pus colored lesion on the L side of my pelvic pooch area . My oncologist on Jan 6, '24 dismissed it from being another cancer spot & said they'd watch the area. By the end of Jan '24, I had a gaping hole almost next to where my L used to be. (They're said it was necrotic/tissue skin from the radiation--) the color & the smell-- you'd think there was an infection. I am on 3 different pain meds (ms contin-- oxycodone, & tramadol, are for break thru pain& I also take tylenol & Ibuprofen as needed for any other break thru pain, I may have). In Apr '24 I went back in for another surgery. To clean up/remove more skin cancer that reappeared. The cancer is staying in the pelvic/vaginal region ( no organs are currently involved)-- I was approved for Keytruda immunotherapy treatments I started those in March, & was just approved to also start having chemo again along with Keytruda. (Along with this regimen of treatment-- I started having neuropathy related feet/knee/joint pain) (which none of the pain meds I'm currently on has helped with the neuropathy-- so they added gabapentin... ) (Oh, & my Reg private Insurance had denied the Keytruda, so I had to go thru Medicaid, & got all this approved. My Oncologist Team has been amazing treatment wise, getting everything approved to move forward)... all I can say is I have cancer. Cancer Sucks!! But if you don't keep your head afloat, & Stay Positive !!