Squamous Cell Vulvar Cancer: Who out there has this cancer?

@silverangels, I can imagine you are very frightened and feeling defeated. Has the cancer on your tongue and back of throat been confirmed as a recurrence or metastasis of the vulvar SCC? What is the treatment plan? How are you doing today?

Hi @wearkitty, kidney cysts are fairly common and they may not be related to your cancer diagnosis. But still, you want to have confidence in your cancer team and know that they are doing the right thing. I recommend that you ask questions to get a full understanding. Your questions are good ones. You might wish to ask:
- What does the cyst on my renal scan mean?
- How will it be monitored?
- Does it need to be removed?
- Why is my white blood cell count high as indicated in the urine sample?
- How is this monitored?

Kitty, back to your diagnosis of vulvar cancer. What do you know about your diagnosis so far? Do you know what stage it is? Do you have a treatment plan?

I wish that I could say that it all went smoothly but it did not! I had my radical vulvectomy on Jan. 2nd. They also did the radioactive and blue dye to get to my sentinel node which they removed and tested immediately. It came back clear, so they continued with the surgery, without taking any more lymph nodes. I went home with the drain, and after 14 days, the stitches holding it in place broke and

it became infected and I got Mersa. Went back to Mayo and spend another five days in hospital. The surgeon had a tumor board to discuss the case to see if I had to do any chemo, radiation or immunotherapy. They all agreed that I should just recover from the surgery and go back to Mayo every three months to make sure there is not a recurrence.

My doctor has 30 inch Tv on the wall so (if I wanted) I could watch the biopsy procedure and see the lesions. Inside turned out VAIN1 and outside biopsy benign. All so stressful ! The waiting for results seems to drag on. But, Aggressive squamous cell on chin, Basil on back. Melnoma on back . Surgery 2 down 1 to go. Dermatologist can biopsy head to toe. Lots of biopsies at once. Whew

I have had this experience too -- vulvar SCC, treated with surgery, then onset of what looks like same thing in mouth and throat. ENT doctor says he will do biopsy from mouth soon,

@dignity, have you had the biopsy done of your mouth in the meantime? Any results?

have an appt with ENT doctor 3/19

I had this cancer diagnosed on January 4, I had surgery on January 17 and the best advice I can give you is that the surgery be performed by your specialist and a plastic surgeon to reconstruct the area.

Welcome, @yolanda1954. Have you had any further treatment after surgery? How is your recovery going?

I had modified radical vulvectomy on October 26, 2023, with 1 right groin lymph node testing positive for cancer. I then had 30 sessions of radiation on the vulvar area and both groins, ending on February 7, 2024. The PET scan last month showed 2 right groin lymph nodes are cancerous. One is fairly large and is growing rapidly. The cancerous lymph nodes were removed June 10. My post op appointment is on June 25. Obviously I cannot have radiation in the same groin area again , so I guess the next step is chemotherapy. Has anyone else had this experience?