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Very High Ferritin (Iron) Level over a Decade after Kidney Transplant

Kidney & Bladder | Last Active: Jun 14 10:33pm | Replies (9)
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@jabrown0407

I suspect you are correct about the nephrologist not being concerned. I have found that if it is not in a doctor's wheelhouse they simply do not care and are of no real help. Very frustrating because the PCP no longer diagnosis, they simply run a few tests then send you to a specialist they believe you should be seeing. Sometimes I think it is more like an amusement park than the real amusement park. If it was a Sit-Com on TV I know I would be laughing.

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emo | @emo | Jun 14 10:33pm

I know…the whole bouncing from one specialist to another frustrates me. I think part of it is not wanting to “step on people’s toes”? Or maybe because if they don’t make boundaries, their workload can snowball. And I do understand…but they also need to understand that it typically takes 3 months to get a PCP appointment.

My mom said the nephrologist said to talk to the PCP to order labs, which suggests to me that the nephrologist knows or suspects which labs to order.

And you’re totally right that in most cases the PCP orders labs and then bumps you off to another specialist!

Thanks for commiserating lol.

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