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Myofascial Pain Syndrome Suspected
My husband has seen every possible doctor and they can't find out anything wrong with him. He is in severe pain all the time. They believe that he has myofacial pain syndrome, but it is hard to diagnose. We are going to see a pain management doctor next week. Are there any medications that seem to work for anyone? OTC medications do nothing for the pain at all.
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I'd like to invite @bustrbrwn22, @ajh5285, @dream1649, and @scungileen to this discussion as they have all posted about dealing with Myofascial Pain Syndrome and may have some insights to share for you and your husband.
@kellybelter, no over the counter medications seem to be helping your husband, how is he coping with the pain? Has anything offered a distraction or helped ease the mental burden that goes along with chronic pain?
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3 Reactionsno, nothing works, I wish something did
@kellybelter-
Is he able to get in small movement each day? Weather a short walk with stretching? While adding little bits to it everyday?
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1 ReactionHi @nrd1
Can you tell me where your husband is experiencing the pain to help me determine if what offered me some relief might also assist him? How long has he been having the pain for? How long he's had it will influence a recommended course of treatment.
Hoping we can help....
He hurts upper and lower back, hits, neck, and arms. His feet are numb and his has gray vision. This has been going on for 3 years. Thank you in advance.
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2 ReactionsHe can walk , but at a very slow pace.
@kellybelter-
Slow is ok, it’s the overall movement that matters. Can he do stretching and things to make him feel better through movement? Was he involved in any type of accident or traumatic event?
What caused the onset?
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1 ReactionHas he been evaluated by neurologist for spine issues, vitamin deficiencies, progressive conditions like MS, Guillian Barre, etc.? To me that would be important. For pain….i found the most relief from myofacial release therapy, dry needling and acupuncture.
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1 Reaction@kellybelter
Has your husband had MRIs of brain and spine, EMGs/nerve conduction studies and small fiber neuropathy skin punch biopsy (due to numb feet) and had extensive blood work to check for diabetes, vitamin b12 deficiency, vitamin b toxicity, etc.?
If NSAIDs do not work for your husbands pain, it makes me think it is neurological and not muscle inflammation. I have taken alpha Lipoic acid and Acetyl l carnitine supplements for small fiber neuropathy pain in my feet/body and it works some. Lidocaine pain patches (Salonpas brand) have helped me with spinal nerve pain, spinal injections have helped pinched nerves/nerve roots, and capsaicin/nerve pain creams have also helped. If muscular pain, Votaren arthritis pain cream helps muscle and joint pain (I have painful partial tears in both hamstrings and bilateral gluteal tendinopathy and my hip doctor recommended using Voltaren cream and getting PT to strengthen weakened muscles to reduce pain).
Here is some information on my facial pain syndrome. Good luck getting help and relief for your husband.
https://www.mayoclinic.org/diseases-conditions/myofascial-pain-syndrome/symptoms-causes/syc-20375444
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2 ReactionsHe has seen a neurologist and rheumatologist , had MRIs, CT scans, and Xrays of head, spine, neck, eyes, and hips. They found nothing.