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Autoimmune diagnosing problem

Autoimmune Diseases | Last Active: Jan 29, 2022 | Replies (223)
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@moxie928

I am having the opposite problem it seems. My doctor just wants to give me medicine though he is unsure of the actual diagnosis. I find this also frustrating... I'm not big on these medicines that have really terrible side effects but I also hate the extreme fatigue I get on and off and the joint pain, tingling in my hands and feet plus often numbness, insomnia, brain fog, extreme anxiety and much more I just don't feel like listing everything.

I too am a student and went from high honors to about average I suppose because I just can't do anything when these episodes happen. Luckily, maybe I will come up with my own remedy, I am going to school for integrative health and plan to go on to study Functional Medicine because I just do not agree with these conventional doctors at all. I feel like conventional doctors these days (probably not all but where I live it's definitely true) do not take any time with patients they just rush us right out the door, not listening to what I am saying and just throwing prescriptions at me. I have caught this early, I believe there is time to prevent it from getting worse, but these doctors just want to treat the disease, not me, and it makes me sick. Like who wants to take medicine forever that has terrible side effects and when we're not even sure it will work, or prevent symptoms from progressing from my undiagnosed issue.

Thanks for letting me vent. I too am very frustrated with all this.

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Replies to "I am having the opposite problem it seems. My doctor just wants to give me medicine..."
njcarolnjn | @njcarolnjn | Dec 4, 2018

have u read any Anthony williams

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John, Volunteer Mentor | @johnbishop | Dec 4, 2018

Hello @moxie928, welcome to Mayo Clinic Connect and it's OK to vent ☺ I think it may be the first step to become a better advocate for your own health...which is something I really believe each of us has to do. I do tend to cut the doctors a little slack most of the time unless they really don't listen. I know that there is no way that most doctors can possibly have the knowledge to be able to diagnose every disease and disorder but that's when I would expect them to ask for help or give you a referral to a specialist. That's one of the reasons I really like my Mayo Clinic doctors at the local Mayo Family Clinic I go to. They work as a team and can provide a referral when needed. Of course I have some friends that are the opposite and want one doctor cradle to grave for continuity.

Are you able to ask your doctor questions about side effects and alternatives? Before I was diagnosed with idiopathic small fiber PN my doctor prescribed gabapentin for the numbness I was feeling in my feet and legs. I took it for two weeks and then told her it wasn't working so I stopped taking it. She brought in her team lead doctor who was a little more thorough asking questions about my symptoms and when I told him I didn't have any pain just numbness and tingling. He said that explains it - gabapentin is only for pain and will do squat for numbness. That was one of the doctor exchanges that got me doing my own research and questioning and drugs and possible side effects before I took them.

Hope you find some answers.

John

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