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DiscussionPMR flare -Shoulder and neck pain..and headaches
Polymyalgia Rheumatica (PMR) | Last Active: Jun 14 3:53pm | Replies (25)Comment receiving replies
Replies to "Ok. I am busted. When on this site or other sites I use the word Prednisone..."
I felt like I was busted too when I told my wife's primary care doctor the story about what I had been doing for the prior 15 years. When I told her that I only needed a prednisone prescription--she rolled her eyes and said I needed a rheumatologist. I didn't ever feel guilty though -- I honestly thought I was doing the right thing. At least I was using the Prednisone prescribed to me but I certainly didn't use it "as prescribed for uveitis."
A month or two before all this, I threw away my entire stockpile of prednisone. My thought at the time I threw it all away was that I wasn't going to need Prednisone anymore. That calculation was only off by 13 years.
The weirdest thing was when my rheumatologist asked me about headaches and visual disturbances. That was affirmative and I said those symptoms happened all the time with uveitis and trigeminal neuralgia but the shoulder and neck pain was brand new. I had no idea what PMR and GCA were. How was I supposed to know why I couldn't lift my arms. I definitely had a knowledge deficit.