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My 21 year old son is having the same problem. He has 6 bulging lumbar discs that no one will treat or give him pain meds for, decreased reflexes and feeling in his legs, intermittently has to self cath because he can’t urinate, frequent constipation, wicked insomnia, memory issues, days when he struggles for words. He has tried everything that might provide answers or relief from the pain. He has been suspected of being a drug seeker. He isn’t. He is seeking help finding answers and some relief from the misery. He has a mood disorder and PTSD from a good friend’s suicide, and it seems that he is judged more harshly because of that. This has been a 2 1/2 year nightmare, requiring him to leave college, live at home, be isolated from friends, and he has been forced to put his life on hold. The future is a big uncertainty, and compassion from the medical community is rare. As a disabled nurse who practiced nursing, mainly in the ER, for 30 years, I do firmly believe that medicine is broken and that too much emphasis is placed on testing, and far too little emphasis is placed on listening to and thoroughly examining the patient. I feel so helpless. Doctors do not want patients to have advocates, especially a mother who is a very experienced, intelligent professional nurse. My family on both sides is full of autoimmune diseases, and I am disabled with 8+ autoimmune diseases and a wretched back from hard work and play and connective tissue issues. This all puts my son at higher risk. We also live in Oregon, where autoimmune diseases are much more common. I pray daily for someone, anyone in the medical world to care enough to really SEE him, and care enough to help him instead of passing him from Specialist to Specialist in vain, while the bill collectors harrass him, further increasing his fear and anxiety, which is not what he needs at all.
Replies to "My 21 year old son is having the same problem. He has 6 bulging lumbar discs..."
@alphacat l worked in the er for 8yrs a nd went to school for occupational therapy so l think l should know something about medicine too. I had a brain injury in 1997 and at time l was working with doctors who cared about their patients. After my brain injury they sent me to a nutty psychiatrist because she wanted to rack up.money and l had erected before but after years of falling, seizures, and as they say psychiatric issues it ended up bringing the medicine l was taking l was allergic too. In 2014 all of a sudden l had high ammonia levels never had a problem with my liver. Now l have 5shunts in my liver and now l have issues with slurred speech, falling and shaking. I am diagnosed with conversion disorder. I had so many test run l.should own radiology associates. I now so tried of doctors, drugs and also insurance companies. So now l have to just rely on God he doesn't charge . Because l would just get so frustrated and l want to enjoy my life. You know doctors get kick backs for test, drugs, referring you to other doctors and even misdiagnosed. I had a diagnoses of abnormal EKG and when l was in the hospital the doctor said all your test was normal. Now it's the all might dollar not the patient. I pray your son gets better he deserves more then that....
We do use THC and CBD when we can afford it, and it works well. I can't imagine not having legal THC since it became legal. You can get tincture and gummies so you don't have to smoke it, and it is organic, certified, and you know exactly what you are ingesting. So much safer, and if you combine the THC with CBD, you don't get the psychotropic effects, or you can experiment with the ratio to get the relaxing, antianxiety effect without being stoned. If you are having a bad day, you can take a little bit more THC and go to bed. You just have to know that you can't drive that day, even if you feel safe.
I continue to advocate for him. This weekend I took him to the ER with a high fever and belly pain. The same nurse who was VERY rude to us on his last visit told us we were rude to her and the P.A. on that last visit. I so wanted to educate her. Since he is an adult I am limited in what I can do to advocate for him, and I have tried, believe me. I think we have been labeled trouble makers for wanting him to recieve treatment, so he gets less and less treatment. After 2 years, even if it is due to no one being willing to treat him, his problems are labeled "chronic" instead of acute. I think it was when I pointed this out that we became "rude", and he left without treatment, both of us in tears.He sees a Neurologist in the future. Hopefully they will listen and take him seriously. I am so frustrated and furious.
Hello @alphacat -- I see that you have recently joined Connect. I would like to welcome you to Connect and thank you for being a strong advocate for your son. I know it can't be easy with all the health issues and not getting much help. I'm hoping his upcoming appointment with a neurologist will find something.
Has your son ever received a diagnosis? I was just wondering if the doctors have ever recommended any kind of treatment plan.
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John
First, Make an appointment to meet with the Director of the Nurses and Hospital. I have seen terrible things and statements go flying by and no one complains. THEN, find another hospital you can take your son to, should you require ER. Definatly get another doctor if your doctor is not listening to your son or you.My son had his entire family with him, when 5 doctors told him he had brain cancer. One went so far as to say, he had 2 months to a year to live. When, I passed out, the doctor realized everyone was upset and he walked out. What a jerk. So, with so many doctor saying what they did to support brain surgery, we went for it. They opened his skull. a scar that will be with him forever. The doctor sent what he found to Pathology. They checked the sample twice. NO CANCER. Such a serious operation to find out the doctor was wrong. One doctor suggested an MRI again before surgery. The surgeon said, we don't need it. When I hear the stories on here where doctors are making decision on our lives and allowing us to suffer pain due to some new laws. The laws should be for those KNOWN to be addicts. It is kind of like Chicago right now. Hundreds being killed by guns owned by criminals. So, Chicago is going to take ALL the guns. Just like the doctor removing ALL the pain killers from us. What good will either of these laws make.
Connect
My gosh..you live in Oregon? The pot clinics have their own doctors. Why haven't you gotten some marijuana for him. My son was diagnosed with brain cancer and told he had 2 Mon to 6 months to live.
There were 5 doctors from 5 different Drs. All but one agreed. He went for surgery. They opened him up and he had nothing wrong with him. A week later he had a grand Mal
Seisure. Sorry spelling. I am so done with doctors. My recent 3 weeks in hospital and you are so right. Tests tests and more tests. And nothing. Take a tylonol..geez. What are they teaching them? Do they make a percentage on tests?