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Underwear options when lichen sclerosis flares

Autoimmune Diseases | Last Active: Jun 15 4:56pm | Replies (35)

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@urbanjane

Hello to anyone that suffers from contingence whether rectal or bladder. I had a toxic pesticide exposure in my high rise home 32 years ago. After living in the home for six months I moved. The resulting side effects were many and are ongoing issues that I now have learned to manage.
After this, I had explosive IBS in public places/ and have learned over the years how to best manage the side effects. For the rectal contingence I had a sling put in 10 years ago at the same time I put in a bladder sling. I also put in a rectal muscle stimulator. I now have replaced the first one with a new model now. This does help some but there are lots of rules you should put in place for both types of incontinence-if you have a more aggressive type.
1. See a registered dietician and someone certified in supplements.
2. Understand what medications you are taking and how they might affect these issues.
3. Understand that there are medications you can take daily that will help you with both issues. Plan your mornings near a bathroom in the morning if you tend to have loose or surprise bowel or urine issues.
4. Botox for the bladder incontinence - I see my female Urologist every three months for Botox in the bladder, I usually get five tiny pricks. This will last three or less months to help with the spastic bladder that happens when you suddenly get up from sitting down or out of bed. This does help. Medicare pays for this.

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Replies to "Hello to anyone that suffers from contingence whether rectal or bladder. I had a toxic pesticide..."

Part two of suggestions from above,
I use certain underwear and also use a pad that sits in the center of the briefs. I use adult diapers if I am having a flare up that seems to last more that 12 hours and also use these after any surgery, thaing them with me to the hospital. It is best to go to the effort to find diapers that fit you right away, try them out and have these and the pads on hand. Know where you can easily get more , should you suddenly need them. sometimes you might order these, the order payment go through and then you find out that they are not coming for weeks.
Keep the necessary toilet cleaning aids behind the toilet hanging or close by. Have a hamper or trashcan filled with pads and diapers near the toilet, and a lined spring lid waste can near also.
Planning ahead and having all the supplies can take the stress out of living with these conditions.
I hope this is helpful and does not offend anyone.

Wow...#4 - I had not heard of Botox for the bladder...love this forum...consider myself educated but as I get older, I realize more and more how much more there is to learn.