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Hey, there, late to this conversation and wondering why you are hesitant to take Prolia? My sister had her first injection a couple of months ago and has been fine. I am hoping to finish my Forteo this year and Prolia was the recommended next step by 3 different doctors I met with, including the Chief of Osteoporosis and Metabolic Bone at the Hosp for Special Surgeries in NYC. He told me to begin Prolia once my Dexa shows -2.0, and get myself to 0 after which he recommends Reclast four months after the last Prolia injection, then 8 months later, another Reclast, and then another one 12 months later and then just monitor. Or, stay on Prolia for the rest of my life.
Honestly, I have heard horror stories about every single one of these meds but after the surprise of two fractured vertebrae (from a severe Covid cough 2 years ago) and shock of discovering I have osteo, I figure its better to do what I can. Forteo makes me tired and draggy, caused belly fat and weight gain and I've been on it now for 17 months and can't wait for it to be over.
Curious about your Prolia warning. Like you, I've been active, fit, etc although I'm still recovering from what began as a shin splint then turned into 10 months of marrow edema in my tibia --from 'overuse', they say. I'm not a tri-athlete, just a now 63 year old who has always been active. Sitting like a potted plant these last few months was a test of my sanity, but, I'm happy to say I graduated back to a boot today and just took a walk around the block...slowly. Anyway, thanks for listening to my woeful tale 🙂 and if you have no fractures, I'd be torn on taking anything but supplements myself. And walking, walking, walking every day.
best of luck!
Replies to "Hey, there, late to this conversation and wondering why you are hesitant to take Prolia? My..."
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You are young at 63. Prolia has its use in older patients who may need it for a lifetime. Prolia is very very difficult to get off of safely without traumatic fractures and its long term effect ( 20 yrs ) are unknown. I am not a scientist - but from all I have been told, it is dangerous drug.
Educate yourself as best you can - find out how to get off PRolia if you need to. YOu must be comfortable with the course of your treatment. Meanwhile Reclast is also very very strong...and has a long half life in the body. Do you need anything that strong???
I too have seen HSS in NYC - My doc at HSS would never give it to me at my age and I am 69. Now be aware HSS is research and evidence based - osteoporsis on the onther hand is a very individual case . In my opinion you need to be evaluated as an individual ( not how a 'group' of people responded) and find out the cause of your condition. Has HSS determined the cause ? HSS did a superficial job with labs - checked the basic VitD,PTH,wheat allergy phosphouse etc. THey did not test bone markers ( bone markers are critically important to moniter therapy) You have very complex issues going on and were very fit like me.
DId you have bone markers done? ( P1NP and CTX) I recommend a full lab evaluation with bone markers - check inflamamation, gi , and many other contributing factors. In my case there was no inflamation but high homocysteine, protein deficincny,high b6, high bilirubin and indications that there are genetic factors involved. - I had to work with an informed caring primary care and local docs. I have been disabled for almost 2 years and am determind to heal and teach and live again. I greatly recommend the book Great Bones by DR Keith McCOrmick - it is a bit scientific but stay with it and it will help your understand and guide your way.
Lastly if you have your bone marker history, your doc will have clear information about when to take you off FOrteo - some people come off 16 ot 18 moths, some can stay on it. Depends on bone markers - are you still building bone in relationship to the dismantling of bone??? There is no magic number to watch for; it is the porpostion of building/vs/ dismantiling based on your history. I myslef will recheck bone markers at 18 months of tymlos - if my building markers have pulmetted then I need to get off the medicance and onto something to help seal in the gains.
Sendign postive energy for you to find an caring and informed path to support and restore your health.