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Brie (@brie87144)

Autoimmune diagnosing problem

Autoimmune Diseases | Last Active: Dec 4, 2018 | Replies (211)

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@kanaazpereira

Hello @alwayswithgrace,

Welcome! You are not alone in your frustrations of not getting a clear answer, especially with all that your are experiencing! We’re so glad that you’ve joined the Connect community.

Here are some discussions, where you will meet fellow members dealing with similar issues:
– Need to find out what’s wrong with me https://connect.mayoclinic.org/discussion/need-to-find-out-whats-wrong-with-me/
– Need help! undiagnosed symptoms. Losing hope.https://connect.mayoclinic.org/discussion/need-help-undiagnosed-symptoms-losing-hope-1/
– Autoimmune? Or is it all in my head? https://connect.mayoclinic.org/discussion/autoimmune-or-is-it-all-in-my-head/

I’d like to introduce you to a few members from these discussions, too; please meet @hchristopher @taterjoy @lisabeans @jewel8888 @lighthouseceliac @robbinr @jeffrow @tiffmeag3 who have all written about the stress and worry of having multiple symptoms, yet no clear treatment path.

I believe the question about whether you had received a diagnosis from Dr. Levin was meant for you, @alwayswithgrace? Have you seen any other specialists for your symptoms?

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Replies to "Hello @alwayswithgrace, Welcome! You are not alone in your frustrations of not getting a clear answer,..."

Hello.  No, I don't believe that was for me as I don't know a Dr. Levin – actually, I'm getting a bit confused about all the info. I'm getting (also getting posts from people with digestive issues, which I don't have).  ??

Hello @olegraymare — I think you may be getting confused because the discussion has more than one thread going on between different Connect members. When you are reading the discussion if the post addresses a specific member they will usually be tagged at the start of the post like this one. When you read this post in the link below it was address to a different Connect member and then when you responded you didn’t know Dr. Levin, I compounded the problem by saying I read it in your post and I didn’t. I read it in the post of the person I had originally responded to. So we just mixed a couple of thought trains together and made chicken soup. I apologize for not seeing that sooner. Here’s the original post I was responding to:
https://connect.mayoclinic.org/comment/85355/bookmark/?ajax_hook=action&_wpnonce=6c8617af9d
If you are getting too many emails you can click the unsubscribe in the email that gets sent to you or you can go to your Profile at the top right part of the screen and click Account Settings. Under Account Settings you will find Email Notifications where you can click the Edit link and disable any notifications you do not want to see.

John

Yes, that makes it clearer to me now. It was starting to remind me of all the mail I get from companies I have ordered from on-line : 0