Thank you for sharing that and for your kind words. It’s somewhat reassuring that in your case it may be linked to the inflammation from PMR and not some other insidious thing…. Although PMR is its own insidious beast. I am wishing you fortitude overcoming PMR.

I can relate to realizing the solutions aren’t always common… I have intertwined chronic pain conditions as well.

I don’t think her inflammatory markers were checked since this has come up twice with appointments with different nephrologists. The first one didn’t even mention it, and she directly asked the other about it because the level went up even more and he doesn’t know why it would be (basically he doesn’t think it’s related to the kidney function, and I guess that’s as far as he can go).

My family is all too familiar with PMR (ugh) because my dad has it. She doesn’t have symptoms of PMR or another inflammatory condition, though pain in her hands has gotten worse, presumably from OA. But it still seems it might be a good idea to ask about it.

My sort-of plan at the moment is to try to get an appointment with a primary that’s hopefully within a few months and not a year and call or message ahead to ask if the provider is willing to order labs before the appointment since they should be able to see the nephrologist’s note.

I shall try to report back with what I find.