← Return to Snapshots of hope: Life on the other side of transplant.

Discussion
Comment receiving replies
@loribmt

Hi @dwolden. Not getting a response to your questions is so uncharacteristic for the BMT team at Mayo. I’m really surprised and can’t imagine why there’s this glitch.
Usually once a donor has been found the process hums right along! Not to mention there is a time frame after that last round of chemo!
And I’m so sorry to hear you’ve made arrangements and then have had to cancel several times already. That is a huge frustration and mentally challenging for both of you!

Have a notepad with:
Husband’s Mayo number
Transplant doctor assigned to case
Notes of the items you want to discuss so you don’t miss any!

Then tell the person on the phone exactly what you’ve written here in the forum this morning.
Such as: That there’s been a donor located. You were told additional appointments would be scheduled but have heard nothing. That your husband has had all the chemo and the clock is ticking!
That because of the information provided to you, you’ve reserved lodging and made plans, only to cancel repeatedly.
Be assertive but polite and tell them you expect more from Mayo. If this were me on the phone, I’d be starting with, “Is there someone in charge that I can speak to directly this morning?” I know from experience there is someone the coordinator at that desk can get for you.

Let me know what you find out! I hold my bmt in the highest regard so I’m really sad when I hear there’s a glitch like this.

Jump to this post


Replies to "Hi @dwolden. Not getting a response to your questions is so uncharacteristic for the BMT team..."

Also, @dwolden, what does your husband’s local oncologist say about the delay? They should be concerned too because the clock is running with your husband’s chemo cycle. His oncologist might want to call his Mayo transplant doctor to inquire about the status of the case.