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Hi Brie, I am so sorry that you are having such a hard time at the moment. I have no medical experience to share with you unfortunately, I wish I could tell you exactly what your problem is and how to get rid of it. For some reason I was drawn to your story and have just joined connect to write to you. First I want to tell you that I shall pray for you. Secondly I wonder if you are a Christian. If so turn to GOD to our Lord and Saviour JESUS CHRIST, tell them the whole story and ask for THEIR Help. Put the whole thing into THEIR HANDS. The docs seem to be failing you GOD THE FATHER, THE SON and the HOLY GHOST will not I promise you. Turn it over. If you are not a Christian become one. It is easy Dear GOD my heavenly Father I accept YOUR BELOVED SON LORD JESUS CHRIST, as my Lord and my Saviour, I have sinned against you and am truly sorry, LORD JESUS CHRIST Thank YOU for the gift that YOU are giving me freely, I accept YOU with the greatest joy as my LORD and MY Saviour, help me to serve YOU for the greater Glory of GOD. then ask GOD for HIS HOLY SPIRIT and to lead you from there. So as I was writing this something came into my mind. A neighbour of mine has had symptoms in common with you for the last eight years. She has suffered horrendously. Well she has finallygot a diagnosis Lymes disease from a tick. She is so very weak though that her family are worried she may not be able to take the antibiotics needed to get rid of it. Please get checked for this also. You never know. Please GOD HE will heal you soon. Know that someone is praying for you. GOD BLESS and keep you safe always in HIS CARE,amen Sara30
Replies to "Hi Brie, I am so sorry that you are having such a hard time at the..."
You should note, Brie posted that point more than a YEAR AGO! Look at the date.
If you have no medical experience to share why are you contributing to an autoimmune site? This site is for persons with autoimmune concerns to contribute to each other...antidotal retellings are not particularly helpful. This is the sort of post that makes me want to stop monitoring the site. Most of us with autoimmune disorders have exhausted our prays to all the various gods. And waved the chicken bones...
Everyone just get over it and ignore what you don't feel is pertinent unless you have information based on your case of what worked and what didn't. Everyone will take what they want from feedback. These illnesses are far greater to each individual than sounding off on everything that really isn't worth it. If you feel the need to respond, do it respectfully, not like the democrats or republicans.
@darlia, hi, i just finished reading some of the thread here pertaining to Brie, Sara30, Steeldove, Parus, Robbinr, gailb, chefbrown, kgoodwin9, peach414144. Ive been on this website for about a year or two, and i thought it was a place where you could mention almost anything if it was done with the intention of offering information, suggestions, advice maybe, or asking for help, or offering help. Brie's case certainly sounds woeful, and she definitely needs help. But she also sounds like a strong woman with a level head on her shoulders. But she doesn't sound like someone that needs defending. I have read perhaps a hundred posts on this website and i have never read/heard such unkindness or vitriol toward another person. Sara30 said that Brie's post called to her, but all she had to offer was prayer, and it sounded to me like "compassion". We, on this website need all the help we can get. There is no need to call someone out for trying to offer help in the only way they know of. I would like to offer up a previous post in this same thread. "Posted by @robbinr, Wed, Aug 2 3:59pm
There are lots of options for people to be driven around these days. UBER, Lift, buses..We are not dead yet! And when we are, we will probably get a huge laugh out of why we had to go through the pain we have in this life. Maybe it is to learn compassion for those who are in pain."
Liked by gailb, ChefBrown, Kanaaz Pereira, Connect Moderator, John, Volunteer Mentor
What happened to your compassion for Sara30? In my opinion, your moderator, John?, should have shut you all down immediately, except for Sara30. Your behavior towards her was abominable.
"Learn COMPASSION for those who are in pain"
Danybegood1
Thanks for posting this @danybegood1. I was bothered by all of this which led me to start a new discussion to address this in case I see it happen again in a discussion I'm following. We all need to be aware of the other person when we post words...words can help and words can hurt. We really want Connect to be a safe patient to patient place where you can do specifically what you described - mention almost anything if it was done with the intention of offering information, suggestions, advice maybe, or asking for help, or offering help.
So here is my advice as a reminder for all Connect members:
https://connect.mayoclinic.org/discussion/you-are-not-helping/bookmark/?ajax_hook=action&_wpnonce=8e0a51603d
John - a patient with PMR, SFPN, degenerative disc disease, high blood pressure and to top it all off - older than dirt ☺
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Sara,
While you may have the best intentions.., for you to assume that those of us who suffer physically are not asking our heavenly Father for strength to endure what we go through is very insulting.
Not everyone believes in the Pentecostal way of asking for healing either!
This connection is here for us to give support and medical advice that is pertinent to each condition.
We share in that way, not spiritually. Your zealous drive to preach won't be received here the way it may on a different venue.
Since you don't have any chronic disease it's not easy for you to understand, unless you are a caregiver, so please refrain from your spiritual opinions here. I believe I speak for most of the majority. This isn't a venue to get into spiritual debate. Not the time or place.
Respectfuly..Darlia