Supplements - What helps nerve pain and/or neuropathy?

Posted by newzbug @newzbug, Nov 15, 2019

I was diagnosed earlier this year with "Sensorimotor Peripheral Neuropathy" over my whole body, though I am not yet showing symptoms everywhere. I do have numbness in all my toes, feet, a large section of my upper right thigh, large section of the side of my left calf, occasional ... numbness in my hands in the middle of the night. Anyway, my neurologist did suggest Alpha Lipoic Acid (otc supplement) to help with the neuropathy. She said that although studies suggest people who also have diabetes have had some success with taking this (I don't have diabetes), she said I might get some help from it. So, yep, it's been about 8 months I have been taking 600mg/daily and it seems to have helped lessen my feelings of 'burning feet'. I am going to increase my dosage to 800mg when I finish my current bottle. I use a brand that has no additives (colors, flavors, etc). Brand: Best Vitamins. Though I don't have diabetes, and it may be helpful only because I believe in it, that is something.

My husband periodically gives me massage on my ankles, tops of my feet and calves which seems to offer some help with the emptiness feeling on that lower part of my body. I am doing some reading research on any other supplements which could be of help. I try not to think about neuropathy too much, because I have since been diagnosed with Pulmonary Hypertension and CTEPH. I stick to reputable sites like the Mayo Clinic and PubMed as well as those of us who have personal experiences. Thanks to everyone here for your help. Maybe someday there will be a definitive cure for this wicked torture.

Interested in more discussions like this? Go to the Neuropathy Support Group.

cjay | @cjay | Aug 11, 2023

In reply to @savomic "AOR on Amazon.ca" + (show)

Thank you!

lym | @lym | Jun 13 7:03am

In reply to @helennicola "Hi John, my experience taking ALA has been very positive for almost 2 years: I take..." + (show)

Would you be so kind as to share the name or brand of R ALA you take and do you buy it on line? Thank you!

John, Volunteer Mentor | @johnbishop | Jun 13 8:26am

In reply to @lym "Would you be so kind as to share the name or brand of R ALA you..." + (show)

Here's the one I used to use but there are others that are also good - https://www.amazon.com/gp/product/B01M0QS5C7/.

lioness | @lioness | Jun 13 10:09am

In reply to @johnbishop "Here's the one I used to use but there are others that are also good -..." + (show)

@johnbishop Hi John I have neuropathy in thighs from nerves being crushed they never regenerated but having massage therapy on thighs has helped a lot also the RALA

John, Volunteer Mentor | @johnbishop | Jun 13 11:20am

In reply to @lioness "@johnbishop Hi John I have neuropathy in thighs from nerves being crushed they never regenerated but..." + (show)

Hi @lioness, it’s great to hear that massage therapy helps. Is the massage therapy myofascial release therapy?

lioness | @lioness | Jun 13 12:24pm

@johnbishop No she works on thighs with squeezing the using a massager I was able to sleep all night where before they,Ed wake me up with burning and nerve pain from femoral nerve I'm going to frequently go get on routine and I have massages at home I,ll use between

lioness | @lioness | Jun 13 12:26pm

In reply to @lioness "@johnbishop No she works on thighs with squeezing the using a massager I was able to..." + (show)

@johnbishop No she had me lay on table put a sheet over thighs used pressure @squeeze thighs first then used massager it was first time I slept through the night so going frequently .How are you doing,?

John, Volunteer Mentor | @johnbishop | Jun 13 1:03pm

In reply to @lioness "@johnbishop No she had me lay on table put a sheet over thighs used pressure @squeeze..." + (show)

I’m doing pretty good. Neuropathy hasn’t changed much over the years. I still have the numbness but no pain but old age, arthritis, degenerative disc disease and balance issues keep me on my toes so to speak.