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Replies to "Hi Andy @andyjustin, I'm not sure I understand what diagnosis you have causing the extreme pain...."
Neuropathy | Last Active: Jun 19 6:37am | Replies (71)
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Hi Andy @andyjustin, I'm not sure I understand what diagnosis you have causing the extreme pain. I haven't heard of tri myalgia but I think I have something similar - polymyalgia rheumatica (PMR) but it's currently in remission. When it is active and flaring up the pain can be incredible like you mentioned. My second time around with it I made some lifestyle changes like you what you are doing now with diet and exercise which I feel does help keep it in remission.
Do you see a rheumatologist? Just wondering if they have some suggestions or treatment to help with the pain.
Replies to "Hi Andy @andyjustin, I'm not sure I understand what diagnosis you have causing the extreme pain...."
John try trigeminal neuralgia, looks like it’s also known as tic douloureux. Or Delarue.
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Try myalgia aka tic de la rue, anyway, yeah, I’m a mess. My voice is croaking Muscles my neck Muscles are dropping AKA turkey neck but I have a great attitude just taking it as it comes all of these new symptoms croaking and Delarue suck a lot of doctors reality or my reality. I’ve been told this is just the way it’s gonna be. I am sure I take medicine for pain, even though the pain sometimes cuts through so I take more medicine gabapentin but eventually, they’re gonna move onto opiates when the gabapentin doesn’t quite do it and have to say with some of this facial pain gabapentin doesn’t do it in the last week. I’ve had over 12 episodes. My jaw goes from being numb to Feeling like a sledgehammer is hitting the side of my head anyway I’m just Venting a little bit today and I’m sure like everybody else. I don’t think you know more than an hour without thinking about it even when it doesn’t hurt so much I’ll leave it at that everybody have a great day.