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@flippo

I agree with markmark007. I have two oncologists that I am working with and they both say that the Chromogranin A blood test is not an accurate test for neuroendocrine tumors since other things can impact the test results. I have had higher results than your and my doctors were not concerned about it. Best wishes!

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Replies to "I agree with markmark007. I have two oncologists that I am working with and they both..."

Mostly what I’ve read explains chromogranin a is a reliable bio marker for endocrine cancers. It must be of some importance because I’ve been tested for it every 4 weeks since early 2017 when I had a 10cm tumor removed along with the kidney and adrenal gland. The diagnosis was extra adrenal paraganglioma. Fast forward to today and my last result was just over 6000. I saw the radiation Dr. last week and will have IMRT to the sacrum for disease progression. The City of Hope Oncologist doesn’t talk much about the chromogranin but the Endocrinologist says it is concerning. All I know is the number has really skyrocketed the last 12-16 months and I worry each time I visit Labcorp and what the next result will be.
Thanks and God Bless