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Whats my future?

Neuropathy | Last Active: Jun 19 6:37am | Replies (71)

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@andyjustin

Mornig,today is Thursday and inthe last week I have developed new symptoms incredible pain from try myalgia. This is a new symptom. I have never known pain like this before and I when I say that I know pain I have broken multiple bones in my life I’ve had to go through withdrawals from painkillers, cold turkey, but nothing compares to the searing pain of tri myalgia. I usually take roughly 1800 mg of gabapentin every day which is which is twice as much as I started a year and a half ago. My symptoms are exponentially getting worse and medicine or should I say the medical profession has no answers I have met people who have had the surgery to leave the symptoms of tri myalgia and I am not willing to do that plainly my long-term prognosis says I have no long-term so now I am busy trying to figure out how I can settle the future for my wife And adult children instead of mine it’s a bitch. I still remain hopeful these new symptoms affecting me wil pass and at least give me a break until they return or they manifest themselves in another way, I am very pragmatic about my situation. I’m still doing everything possible such as great diet. Great supplements, daily workouts support from my friends, but the hits keep coming staying positive. But nonetheless, living with my reality and the reality of my situation You know it’s not really just a question mortality it’s the question of being able to tolerate losing control of The body that was gifted to me

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Replies to "Mornig,today is Thursday and inthe last week I have developed new symptoms incredible pain from try..."

Have you heard of Botox injections for this? You might do some research on that. Because my neuropathy is progressing, I was having trouble lifting my eyebrows, and I had a permanent scowl. I had Botox injections done between my eyebrows . I could actually feel that tight brow area relax. I look better, but a bonus is the release of tension in my brow. I did some reading then about Botox as a treatment for neuropathy. You might look into it.

Hi Andy @andyjustin, I'm not sure I understand what diagnosis you have causing the extreme pain. I haven't heard of tri myalgia but I think I have something similar - polymyalgia rheumatica (PMR) but it's currently in remission. When it is active and flaring up the pain can be incredible like you mentioned. My second time around with it I made some lifestyle changes like you what you are doing now with diet and exercise which I feel does help keep it in remission.

Do you see a rheumatologist? Just wondering if they have some suggestions or treatment to help with the pain.