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My Husband's journey with Glioblastoma

Brain Tumor | Last Active: Jun 22 4:12pm | Replies (172)

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@pnf24

I’m a little unsure if I’m posting in the correct location, but here goes: In 2002 I was diagnosed with an atypical meningioma in the left frontal lobe. At the same time, my NS found there was a small parasagittal tumor that he advised leaving. Over the years, I have grown a few small tumors that seemed to grow to about 1 to 1.5 cm before they either necrosed or just stopped growing. Last year was the most recent one and me NS suggested I consider gamma knife as it had appeared and grown a bit more than the others during a 2 year period (the length of time between my scans). I was put on an every 6 month MRI schedule. The first last Sept was fine, but on March 29, 2024 a new tumor was found in the left frontal lobe-basically at the site of my original tumor. Because it had popped up and grown rapidly to about 1-1.5 cm, my NS recommended surgery which I had on 5/9/24. Needless to say, I was shocked when the path report came back as possible high grade astrocytoma or glioblastoma pending reports from Mayo and NIH. The final report came in this afternoon showing GBM. I actually started the rad/chemo regimen last week. As of today, I’ve had 5 rad treatments and 7 TMZ. So far and fingers crossed, I have not had any serious side effects. I’m tired, but really blaming it on surgery just a month ago. I told the Neuro APN that I didn’t realize a benign tumor could recur as a malignant one. She replied that it didn’t. They felt thus to be an entirely different entity. Just wondering if others have had this type of BT history?

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Replies to "I’m a little unsure if I’m posting in the correct location, but here goes: In 2002..."

@pnf24, I can imagine that your new diagnosis came as a shock. It seems that you've won a lottery you didn't want to enter in getting 2 different types of brain tumors - one benign, one not.

How are you doing with treatment? What kind of radiation are you having?