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Support Group for Those of Us Living With Mild Dementia
Aging Well | Last Active: Oct 20 7:51pm | Replies (161)Comment receiving replies
Hi, my husband, has been diagnosed with MCI in memory loss. His executive functioning is superior. But I am feeling alone dealing with his forgetfulness, repeating of stories, and simple repetitive tactical things that I teach him over and over, like how to retrieve a Venmo, for example. Some days I'm better than other days, but it seems to be progressing faster than I had thought, and I feel overwhelmed. I'm supporting the household, have 5 children and grandchildren and I also am primary care giver to my mother in assisted living with dimentia. How do I cope with all of this. I feel hopeless some days and am getting depressed myself. My friends don't know and my children do know but they have their own lives.
Replies to "Hi, my husband, has been diagnosed with MCI in memory loss. His executive functioning is superior...."
@rolett1, I invite you to follow the group specifically for caregivers. Click the link and the click "follow for updates" and join the discussions here:
- Caregivers: Dementia Support Group https://connect.mayoclinic.org/group/caregivers-dementia/
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I'm really sorry that you're going through such a difficult time.
This statement of yours concerns me a little, though:
"...my children do know but they have their own lives."
That is no doubt true, but their eyes need to be opened to what's going on.
You had your own life once, didn't you? You set it aside to do what's needed. The children need to step up and do *something* to help.
You haven't posted a photo of yourself, but I bet you don't wear a cape and an outfit with a big "S" in front. You're mortal, and from the sound of it, you're pushing yourself way, way past your safe capacity.
I think you've got to summon all possible resources around you, and that includes your children.
And if they get mad at you for insisting they help, how are you any worse off?
Forgive my blunt comment, but the thought of your kids parked in front of a TV while you're running yourself ragged is pretty upsetting, to be honest.